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ROCK-: welcome kim
Kim^^: :)
Lonewolf: Is anyone else coming?
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ROCK-: not too many lonewolf
Lonewolf: ok
Lonewolf: Hello eveyone
Lonewolf: welcome to tonight's meeting
Lonewolf: Our topic tonight is epilepsy
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Lonewolf: and ROCK has agreed to give the meeting
ROCK-: yes
Lonewolf: So ROCK I am handing the floor over to you
ROCK-: thank you lonewolf
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ROCK-: lets wait a couple of miutes,before i start
ROCK-: welcome wacky
ROCK-: welcome woz
ROCK-: welcome T_J
ROCK-: welcome angel
ROCK-: well shall we start
ROCK-: ok
Lonewolf: go on
ROCK-: how many of you have epilepsy
Kim^^: i
Mooooooo: me
ROCK-: I would like to open the floor for questions
wacky: not I but had bad siezure all last summer found out was meds causing it
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T_J: Thwy think I had when little, but no seizures or anything, just suspect brain waves.
ROCK-: that is one of over 30 ways to have a siezure
wacky: was a scary ex perience 4 months b4 the discovered prob
ROCK-: thereare many ways to have an attack
Lily: desribe some rock?
ROCK-: Gran mal,is a large siezure,where the whole brain is affected
ROCK-: yes lonewolf
Lonewolf: is this the type you have?
ROCK-: yes
Lily: u get a nap?
Lily: after the seizure?
ROCK-: thats for sure,until you wake up and feel like a truck hit you
IrishGen: what are we talking about?
Lily: ew
ROCK-: epilepsy
ROCK-: wacky
IrishGen: Oh
ROCK-: wacky
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wacky: i had petiet mals but most said that id disapear and I had time lapse when I CAME BACK
ROCK-: the causes of a siezure is really a guess by most doctors.
wacky: Its a whole summer I cant recall
ROCK-: reader13
Reader_13: Are there any long range effects?
ROCK-: yes,me for example should not be in a stressful situation
ROCK-: Ki
ROCK-: Kim
Kim^^: i have both grand mal and petit mal
Kim^^: grand more often
wacky: I cant remember last summer
ROCK-: me too,did they pin point what triggers yours
IrishGen: bbl everone
Kim^^: me what triggers i don't know that they ever did but i iknow lots
ROCK-: ok glad you stopped in
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Kim^^: no sleep is a guarantee
IrishGen: Thank you ROCK
ROCK-: not at all
IrishGen: Goodbye
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ROCK-: yes T_J
T_J: What different types of epilepsy are there?
ROCK-: There are at least 30 types known so far
T_J: I have head of genetical, but I know there are others too.
ROCK-: some people can't look at flashing lights
ROCK-: Kim
Kim^^: 30 different types of epilepsy or types of seizure?
T_J: epilepsy
ROCK-: seizures
ROCK-: anny
Lonewolf: Excuse me
Lonewolf: ROCK?
ROCK-: yes
Lonewolf: would you like to stck to the rules
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anny1: i have partial complex(petite mal) and have had grand mal
Lonewolf: if so I will enforce
ROCK-: yes,i think weshould
ROCK-: ok
Lonewolf: ok rules in effect
Kim^^: repeat rules please
ROCK-: yea
Lonewolf: type ! for a statement and ? for questions
Lonewolf: ROCK will call on you
ROCK-: right
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ROCK-: does anyone have a question
ROCK-: T_J
T_J: Anyone heard of the ketogenic therapy?
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ROCK-: Reader_13
Reader_13: What types of medication are in use today for epilepsy?
ROCK-: it depends on he person
ROCK-: lonewolf
ROCK-: you have a statment?
Lonewolf: I have heard of ketogenic-long time ago-why don't we all let ROCK start his presenttion then ask questions
ROCK-: sounds fine to me boss
T_J: Ok with me...
ROCK-: Epilepsy is greek for overcome
ROCK-: Brain cells have electrical currents going through them
ROCK-: when the current is affected a siezure may start
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ROCK-: flashing lights,certain sounds and too much stress are good causes of a siezure
ROCK-: People look and act as normal as anyone on the street untill something triggers a siezure
ROCK-: yes lily
Lily: is christmas a bad time then?
ROCK-: yes
ROCK-: and being a speaker can kill you
ROCK-: :)
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Lily: lol
ROCK-: does anyone have a question,or comment?
ROCK-: lily
Lily: what do you do if someone is having a seizure?
Kim^^: !'
ROCK-: that depends on a number of factors
ROCK-: Kim
Kim^^: no go ahead i forgot sorry:(
ROCK-: ok
ROCK-: epilepsy is still a subject doctors are studing
ROCK-: Lonewolf
Lonewolf: Stay calm-keep the persons head turned to the side do not force anything into the persons mouth this is for grand mals
Lonewolf: time the seizure
Lonewolf: and if it is prolonged call 911
ROCK-: anny1
ROCK-: comment anny1
anny1: it is a common myth that ppl will bite or swallow tounge
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anny1: often bite tounge acltally
anny1: actually
ROCK-: that is so missunderstooh
ROCK-: d
ROCK-: Reader_13
Reader_13: What is considered prolonged?
Reader_13: In timing the seizure...
Lonewolf: no breathing for over 3 minutes
ROCK-: up to a minute and a halfis not unusuall
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ROCK-: question Anny1
anny1: i would like to know what type of aura's you guys have?
ROCK-: I have none myself
Lonewolf: My son used to say he had a funny feeling
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ROCK-: Angel_27
Angel_27: I had 2 friends a few years ago and they had epilepsy, and their seizures seemed to be caused by stress more than anything else
ROCK-: yes,mine are also
ROCK-: Kim
Kim^^: thi thought i had an aura but the doc said it was a smallwer seizure
ROCK-: anny1
anny1: stress and lack of sleep cause most of mine
anny1: and
anny1: sometimes i have a strange smell
ROCK-: Kim^^
Kim^^: stress ay trigger one but lack of slee[p alllllways trigger a series
ROCK-: intrepid
intrepid: I rarely have them, but when overtired or when I see a flashing commercial, they'll come on....I had trauma-related ones for years
ROCK-: that seems to be one thing us epileptics have in common,stress,and flashing lights
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ROCK-: anny_! did it have a metal taste?
Kim^^: nite
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ROCK-: 65% of siezures are unknown
ROCK-: Woz
Woz: what is the metal taste
ROCK-: when I am about to have a siezure I taste something like metal,or the detist office
Woz: k
ROCK-: T_J
T_J: What different kinds of treatments are there?
intrepid: I always have tingling in face
intrepid: and a sudden increase in amount of sugar I eat can give me auras
ROCK-: mostly a medical mixing of different medications
ROCK-: Woz
Woz: anyone elce have a metallic taste b4
ROCK-: Reader_13
Reader_13: What is auras?
Lily: is the open brain surgery of help, where patient is awake?
T_J: Sounds risky...
ROCK-: it is for some
ROCK-: yes,very risky
intrepid: auras are feelings you get b4 seizure
Reader_13: Thanks...
intrepid: np
ROCK-: Like a lite that flashes,after you have that same circle of lite
ROCK-: Again not everyone has this
ROCK-: can someone here share their experience
ROCK-: Who else here has siezures
intrepid: mine were related to undisclosed abuse, with disclosure, they disappeared, although I do have CP and had them from that as well
intrepid: but infrequently
ROCK-: Thanks intrepid
intrepid: :)
ROCK-: Lonewolf
Lonewolf: My son had seizures for years from a cyst in the right temporal lobe
Lonewolf: he ranged the whole gamut from grand mal to temporal lobe siezures
ROCK-: Did he have surgery
Lonewolf: yes and has not had one since except a possible one during a tatoo
intrepid: oh wow
ROCK-: Does anyone here have them from stressfull situations
intrepid: I did, I was having them 14 hours daily
ROCK-: So even a tatoo caused him to titen up an have a siezure!
intrepid: dropped out of high school for a year
intrepid: then started college
Lonewolf: pain induced
ROCK-: Very interesting,pain indused is a little different,thanks
Lonewolf: welcome
ROCK-: would sombody share with the group about gran mal in their lives!
ROCK-: Lonewolf
Lonewolf: second hand my son
Lonewolf: we stayed terrified and he stayed angry
Lonewolf: when he took pheno barb it was a nightmare
Lonewolf: totally different personality
Lily: night all
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Lonewolf: he wanted to do everything the doctor said he couldn't do
Lonewolf: esp drive
ROCK-: thanks
ROCK-: Woz
Lonewolf: he lost his childhood memories after surgery until just a couple of years ago
Woz: thanks rock bye all
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Lonewolf: some things he still doesn't remember
ROCK-: yes angel
Lonewolf: ROCK desribe yours
Angel_27: rock, u said yours was caused by stress right?
ROCK-: some,yes
Lonewolf: does anyone have anything else?
Lonewolf: Thank you ROCK
ROCK-: strob lights will cause me to have one in less than ten seconds
Lonewolf: enjoyued the meeting
Lonewolf: round of applause for ROCK
Lonewolf: meeting is closed
Reader_13: applause...
ROCK-: I think I'll have a siezure now:)
END
