*** LOG OPENED: Wed Sep 30 18:02:26 1998 --- Participants: HandiBot ChanServ (nanook@eskimo.com) Snow (kmc_mullin@hotmail.com) wat Lily (alison@mi-comtech.com) HelloKit (disabled@softhome.net) Annie lin samiam judi RedHawke --- thank you lin....I like you also logging on try this one ok okay * HelloKit . o O ( Hopefully I'll remember to turn it back off this time... ) r u married? sam *** Mimi has joined #disabled hi mimi Hi Mimi :o) yes I am lin hi, mimi What was the first question again Carly you lin? hi mimi Mimi!!!!!!!!!! *** LordLinux has joined #disabled hi everyone :o) hi mimi hi LL You mean in the message Judi? I have no idea... lol its gonna time out sam I meant to save it welcome LL hello r u disabled? sam. i am single, never married. polio wat neither one connected hmmmmmm i have letter * LordLinux is mad *** suze has joined #Disabled what was the ? sis why LL hi suze:)) hi suze Hi lily no lin....lost a child but I am not - Have you made a statement that was based on a predisability life experience and had someone underestimate its validity because they can't get past their view of your current physical disability? hi judi my AWE32 Sound Card aint working right awww LL sorry bout that not working wat :-( that was it, judi lin where are you from? thanks Its very true np :o) ill try again ok thanks wat yes, mimi, ppl treat me like im invisible, dont count If you become disabled everyone thinks you have no knowledge anymore Hiya Mimi :)) exactyly no wat, what's wrong...is it me? hi kris!! :o) bye guys gotta go *** Annie has left irc (Leaving) mus6t be bye annie They also think you no longer speak for yourself bye annie I saw the album Mimi :)) its great :) how are ya? oh good!! i will yry again ok thats true judi what's wrong with the first one? okay...go for it I think seeing someone become disabled makes ppl uncomfortable I used to go out to eat with my cousin who has MD and the waitress would as ME what he wanted right, judi, like yor opinions dont matter sam, i am from taiwan, graduate student in mn, have been US 1 1/2 years. almost finish my class:) they realize it could happen to them as well I am doing great Mimi :) I got a B in my AS-400 class :) oh cool!! It really aggravates me to have clerks, etc talk to my companion instead of me that is right lin....MN where it should snow soon :-) u think its fear suze?? true suze how's your paper coming well take it ok for some ppl, they don't want to be around u not so great elsewhere but it will be ok I did take it wat lol I still don't know wtf AS-400 is but I'm really impressed anyway ;o) lol exactly Mimi because it makes them think of their own vulnerability I always do, but it won't connect agree, suze i lost several friends after i became ill I was like, I don't know, why don't you ask him?? it acknowledges acceptance, but won't connect could be suze Mimi scott did u get my e-mail? close those out only tske next one ok I did wat yep, i did, thanks hon :o) ok close those out x them I did wat they are all gone ok hello LL sam, i am doing my paper now. yes, winter is around the corner, i can feel that.:) kind of shock by the snow here np I forgot to add you this morning, I had your picture saved in the wrong folder, I'm sorry :o( ok this one hrhr heheh even LOL lin....your thesis?? he I was surprised - the other day when we went out to lunch, the waitress was actually curious about my disability. I haven't had someone ask in so long... most ppl just point and stare. I didn't mind her asking at all... just wasn't used to it. heh Carly what do you think about Suze's idea one, had been my best friend, known for 10 years others, we're great and i still have many close friends who have been there for me from highs to lows and i really appreciate them when u become ill/disabled you find out quick who your real friends are and it's very difficult to understand those that r gone missed it, hang on... its nice when they ask instead of stare isnt it Carly what did she say, Carly? you get it true, sue nope wat :-) why?? *** Jo- has joined #disabled welcome jo hi Jo :o) where r u? sam, r u working? not thesis, it's alternative paper. what did you change wat? im trying to send it hi jo hi Jo near washington d.c. lin the headerline for lily Hello Carly, Lily, LordLinux, Mimi, judi, lin, RedHawke, samiam, Snow, suze and wat. hmmmm wat I don't know hi Jo hi jo long winter there? sam brb phone is there one there k *** peter1960 has joined #Disabled it's especially difficult to understand very long relationships that end after u become ill hello peter no lin....short winter here....I really like that hi peter! :o) wat, in my file you mean? hi peter do you guys want Question 2?? She just said she had seen me in there a few times and was curious. Since my arms are the only thing really noticeable, she asked if my arms were just not functional from the elbow down or what? this one is gonna time out it just did bummer awwww I missed #1 but will be glad to see @ 2 hello jo,mimi, and sam that was great Carly that it didn't bother you Hi Jo :) welcome peter hi suze :) how are you i was getting sick today in grocery store So I got to give her the whole AMC definition thing, and her jaw almost hit the floor when I pronounced it... lol get this one ok ok, the topic is people who became disabled as adults..... : -) Question #2 is???????? it won't come wat *** Robin-1 has joined #disabled okay Question #1 was - Have you made a statement that was based on a predisability life experience and had someone underestimate its validity because they can't get past their view of your current physical disability? questions dont bother me, withdrawel does and i could see clerk looking at me, i was getting dizzy and started shaking hi hi robin Question #2: - Do you feel that your disability has given you an insight into how people interact with you now? * Robin-1 hugs Sharon save the children from Lily finally, she asked if i was ok, i said yes, i'm just not feeling well thank you robin hug back i prefer that, than just gawking at me lol, yup definitely lily the maniac this one is gonna time out too wat its not even moving a little bit Definately! At times the just look and go yuck and turn away. Or they come up to me and treat me like a 2 year old. Those that know me see past the chair and the person inside. sometimes, I've had ppl follow me around people think I'm deaf dumb and blind no way sue follow you? and brainless Hi Robin ;) yes, i was in a casino once, having lots of difficulty, shaking Ugh... did I tell you guys about the security guard at the airport last year when I went to RI? this guy was following me around, People will talk to ferret face and ask him how I am today, I am sitting right there. no no, what happened Carly? watching me the whole time that is just rude Makes me so mad-Jo Jo I would smack them :o) fraid of lawsuit maybe, lol im sending again yea, sis, they speak yo me in loud, simple words k wat yup is there anyone here who either is or knows of someone who could see but has now lost their sight/ lily?? jrt jrt its gonna time out too I know someone who was born blind, regained his sight, and lost it again, Robin awwww wat yea, jrt unless you grt it very interesting :-( no wat I keep telling some of them my brain and hearing work fine and so do my arms. If they don't stop yelling at me and treating me like a two year old I'm gonna slug them and show them how good the old arms work. *** peter1960 has left #Disabled that is strange mimi ok you dont have any on screen then???? or you'll dissassemble them, right Jo lol, jo no wat go girl go ;} you go jo! i have a friend in Canada who has just lost her sight and wants to correspond with someone with a similar experience ok im gonna send now I withdraw brb, putting baby to bed yeah dissassemble good word I saw shortcircut too. k Well, since I was pushing w/c for balance, I had to do a search instead of metal detectors... I had some Cadbury eggs (it was right after Easter) and this b**ch, in a tone like she's talking to a 2-yr-old, 'Cadbury's! Did the Easter bunny come and see you?!' *** wacky has joined #Disabled lol Carly what did you tell her? hi hi wacky:)) hi Brian :o) I didn't, just gave her a look. ohhh kit that's horrible did ya smack her? wacky?? wat has midi phone let me send to wacky samiam ill gert you later k brb for real now... This is still new to me, i haven't had too many bad experiences where ppl condescend to me Kit my sister is 30 and looks about 14 with visible disabilities, they treated her like a baby. She told them she paid for the ticket and she earned the money and if they didn't smarten up she would talk with their supervisors. mostly staring ok wat i had a horrible experience on a flight last year lily said u would like this attitude adjusted real quick. Suze what did they do to you? brb Everyone else was wonderful, it was just that security guard that p!ssed me off... i was ill on both flights, was shaking, and they made me sign waivers obsolving them hey guys if lily chimes give her time it will take a bit of any responsibility for me on flight home, woman next to me was freaking out so they moved me to back of plane had a whole row to myself thx, wacky bro!!!!!!!!!!! Hey they yanked me out of wheel chair to pass detectors over me. Guy wasn't paying attention and smacked me in small of back on scar and my legs went out and I went to the floor. Hey Suze fold up the arms and have fun. god sue hi sis back and when i got off plane my wheelchair wasn't there wb Mimi thanks :o) back and it was like 1:30 a.m. you guys want question #3? and o'hare is huge airport yup Did they find your chair? - Do you feel that your value as a human being must be selling at a radical discount relative to its true price? where was it sue the gate attendants finally said 'can't get u a wheel chair, all out Only problem I had was I had asked them to transfer my w/c at the layover, but they brought it to the gate so we had to push it to the other gate. can't get ahold of anyone, sorry what? they have those little motorized golf carts and i had to walk through that whole airport and i was very sick mimi, self esteem gets really low *** LordLinux is now known as LL-BRB *** wacky has left #Disabled *** wacky has joined #Disabled Just sit there and tell them I am not moving without a chair! They have to get one. wb brian they were trying to fix one motorized for another passenger who was paralyzed sorry np and one for you??? anyway,....that's how i got these free flight certificates i'm going to vegas with Oh yeah that too... also at O'Hare... I was supposed to have an electric cart but it never showed up and I almost missed the plane. it was horrible wat....nothing absolutely sue Mimi I think many times we are so glad to find someone to hire us we take jobs at lower pay just to get back into job market. Sell ourselves short. value as human low i'm getting my doc to write note for me for this flight so i don't have any problems on-board *** wacky has left irc (Leaving) yeah, that sucks Jo yea, sis, zilch ?????????????????????????? embarassing when the captain comes to talk to u about your condition :-( watttttt and several other flight crew members I'm not really asking these questions guys, I'm just copying them off an email from Carly, and she got them off some web site You have to make sure in your heart you know how good you are and impress that on other people. If you don't stand up for yourself how do you expect others to. whatttttttttttt!!!!!!!! brb *** wacky has joined #Disabled *** Robin-1 has left irc (Leaving) i just wanted to fly without being so obtrusive No, they e-mailed them to me. Robin, Laura is at school tonight heh wb bro :) *** CapnK has joined #Disabled hard Jo oh, ok, they emailed them to Carly then :o) thanks lol hi capn its trying to send says you have not accepted hi CapnK but I have wat Howdy every time how are you capn ??????????????????????i dint know then not too bad yourself? Airlines need to be delt with a firm hand. If you let them dump on you they will. If you set it all up ahead of time and insist on the service or you and all your friends and relatives will never fly with them again they will listen. *** LL-BRB has left irc (brb) Normally I would have cried 'spam', but it was disability-related, so I had to give them that... they did target it, unlike most of those jerks out there... need to feel needed mimi, im trying to answer, but cant type in fast enough must be lagging bad u are well...generally, the flight crew was excellent don't worry Alison, like I said I'm just throwing them out there ping me sam they took very good care of me,. the problem really was at the gate at o'hare no wat.... I'm not I'm fine judi that is why I do volunteer work and try to contribute somehow to society every day. Even a little thing can make a big difference. i may be then and there had better not be any problems on this flight brb k *** wat has left irc (Leaving) I try to help people with computer agree with judi, yor self-esteem gets lifted by being needed *** wat has joined #Disabled and i'm gonna inform them ahead of time that i am a disabled passenger yes wb wat You can volunteer to call seniors every day and make sure they are ok. You can go and do some kind of volunteer work. and have them make arrangements for me ahead of time as well wb wat Question #4: - Have you experienced an odd lowering of expectations vs. what you know you can achieve (relative to past performance) through being an active participant in life? i do that, it really helps, jo I'm homebound yup, mimi When we concentrate on ourselves and our own problems all the time we tend to wallow in self pity. We got to get past that and try to help someone else. Doing that will make us feel more self worth and better about ourselves. Also helps pass time of day. that question was kind of after the fact because everyone already answered it lol judi, can do things com uter related yes and wat can make midis:)))) * Mimi is done with questions now, all the rest are things you've already been talking about So judi print up placemats or cheery notes to go into Senior Center lunch bags, anything to brighten someone elses day. Awwwwwww unless you want to see the rest of them?? judi I am homebound too. But still contribute. yes, i do okie sure hit us with them. *** tallboy68 has joined #Disabled hi tallboy Question #5: - Do some people all-too-constantly condescend to you without any apparent reason? hello hi tallboy :o) i said wow! yes, they do, like im 5 brb me too Yeah they do sometimes. But you can learn to use it to your advantage at times. or deaf that rarely happens to me WAITER: and what would HE like as heasks my date. *** dl has joined #Disabled wb chris I get lots of help getting stuff off top shelves in the store. And they feel good cause they did a good deed so let them. *** wat has left irc (Leaving) hi dl
Hi sam hi dl :} yor lucky, sue, ppl think im drunk
Hi snow how are you dl? waiters and waitresses are on the top of my hit list. lol
Good. Just got done with my last student ppl think Im stupid i've had that too, lily but not from ppl who speak to me just get looks you know Lily when I waddle out to the mail box sometimes instead of using the chair I have been acused of being drunk. Know how you feel. I guess I'm lucky - never had problems with waiters/waitresses that I can remember anyway. yup, wacky, been there *** dl has left irc (Killed (hub.eskimo.com (irc.eskimo.com <- services.newnet.net 204.122.16.36] (older nick overruled)))) *** dl- has joined #Disabled Kit one asked ferret if I needed a bib. Wanted to kill her. wb dl try being on the receiving end of one of those questions...talk about discomfort!! hello dl It did it again Oh my God! lol dl lol, jo, i need a bib sometimes Yeah I use lots of paper towels at home but out I put the napkin in my lap and try to hit the mouth. *** Mooooooo has joined #Disabled hi Daniel :o) hello Moooooooo darling! xxxxxxoooooo hi daniel /:o) '...and will your nurse be with you?' the teacher asks his disabled studen lol, jo *** CapnK has left irc (CapnK) hi mooooooooooo *** CapnK has joined #Disabled When I first met KitsMan and he came out to visit for the first time, ppl stared because I guess they didn't think disabled ppl had those kinds of relationships. wb capnK wb capn wb cap Hi Daniel :)) Kit we are supposed to be deaf, dumb, unable to feel anything, and if in a chair unable to have sex. Got news for them. lol lol u get that now, wacky?? SEX? Disabled have sex?????????????? Why do so many women think men in a chair can't have sex??? no imagination Yes disabled have sex. Find willing partner, relax and enjoy yourself. donno, theyll break?? Jo next time, just tell them that you have sex far more often than your 28 year old able bodied married friend in Quebec ;o) *** tallboy68 has left irc (Awwwww Melanie, do I HAFTA go?!?!) lol Cus they think if yur legs are paralysed your Di.... must be too awww, mimi I just grinned and tell them they haven't lived till they try it on wheels. *** lin has left #disabled lol, wacky rofl lol hello lin * Snow is learning alot tonight :P its true lol * samiam so is sam haha Kris yes, true everything i know about sex i cant count on one hand can lol lol yes, we know :oP lol But hey I have no complaints *** CapnK has left irc (CapnK) this is a good lead in to Question number..whatever: It's true though. Poor ferret face is alway getting told how it must be awful being married to a disabled woman and not able to have sex, by women hitting on him wanting to help relieve his built up tensions. - Are there days when you're just sick of dealing with all the misperception of the abled world? and for females, men think we'll combust or something *** oz has joined #Disabled hi oz hi oz hello Mooooooooooo let's get together and you'll need all your fingers and toes plus a large yellow legal pad to keep track. hi oz lol lol lol, jo sick of dealing.....yes choice inthe matter no we still gotta do it bbl *** Mimi has left irc (Leaving) i feel a love connection in the air how is everyone Yes Mimi there are some days I'd like to shoot all able bodied people for being sooooooo dumb. great oz and you *** oz has left irc (Killed (hub.eskimo.com (irc.eskimo.com <- services.newnet.net 204.122.16.36] (older nick overruled)))) Love Connection...that would make a good tv program lol except Moooooooo knows ferret would kill us both. *** ozlyn has joined #Disabled wb oz thaks hi oz :) welcome thnks wb ozlyn but what bout this not being able to get out of bed bit?? Are there some days that you are sick of dealing with the mispreceptions of the abled world? is the question right now. that wasnt my experience thanks snow I knit mittens when stuck in bed or embroider or crochet things for gifts or for Shriners hospitals. ok i might come back later i am going to try to do some thing else right now talk to you all letar if you are still on bye oz OH ITS NO FUN BEING SICK IS IT? asks a church member to the boy who is blind bye oz i wud wake up, leap out of bed You can lay in bed and talk on the phone, monitor a cb radio and get help for people, read to people or help them do letters if they can't write. Help people learn how to read. I can't use my hands much *** RealAnna has joined #Disabled hi everyone hi anna nervous that it wud be my last day hi RealAnna hi hi snow *** ozlyn has left irc (ozlyn) hi anna dl :) gotta go-tired how are you tonight lily love all bye judi ok, bye sis *** judi has left #disabled bye judi They have phones that are head sets and voice activated. They have holders for books and page turners. Lots of things adapted to help people that can't use hands. im great anna, you? jo, a poerson needs to want it first When I finally get it set up, I'll be able to use a headset plugged into the computer as a phone. Right Lily! If you want it bad enough you will get it. let me know how it works Carly, ok? many newly dis. adults havent reached that stage yet, jo My left hand was smashed and thumb is fused but I figured out how to knit, crochet and do needle work still. jo, you have spunk it's worse when i'm sick for extended period of time Yeah I made up my mine 25 years ago that I was gonna find ways to do things I wanted to do. hey I can brush my own teeth! I love that freedom that's when i feel so alone most ppl r devastated at first, then accept and move on Of course I still haven't figured out how to hang glide, free fall or drive a race car. *** Anna has joined #Disabled when i've been in the my apt. by myself for too long lol, been there wacky lol jo im back - got booted you have to , or you never live again wb anna wb Anna thanks wb anna suze when you start to feel that way call someone or come on here. Do something to change your situation. it's hard, i feel weird calling ppl and saying, 'come over here, i need company' someone can delete the RealAnna - mistake connecting back :) I can doing somethings docs never thot i could do I can cath myself jo, thats why this such a good place i have called friend a few times, had him take me out, or to his apt, just for We may be disabled but we still have charge of our lives and must make the effort. Why feel weird. Able bodied people get lonely too. I don't think that's wierd sue change of scenery *** RealAnna has left irc (Local kill by Mooooooo (aint so real anymore)) Why not, suze, its done all over the world in all societies lol lol moooooo thanks lol ;} not for long anyway lol i've never had to do that before i became ill my pleasure my friends have bery busy lives, not all of them have cars either sue, how long u been ill? You never noticed it before you became ill. Now you have lots of time on your hands you notice a lot more. since 95 ok, me 92 suze are your talking about having to rely on others to get around I notice the ants crawling around in the grass, the butterflies, the birds and the flowers. Before I was too busy to stop and see them. sure, like sometimes i'm too sick to drive to doc or do laundry, or cook sometimes i need help i cant drive hate that that could be agood thing sue call a cab suze or call a friend. On good days make extra food and fix so you can microwave on bad days. Plan ahead. i can relate very much suze - it is very difficult at times too sick go see quack how wacky? o, lol cabs r expensive would cost fortune to and from doc yup but they are cheaper than trying to drive yourself and wrapping your car around a pole or killing someone else. yes do you have any community services that aid people with tranportation needs wud love it if a friend took me out in car Yeah we have thunderbird transport here that picks you up and takes you anywhere in town for $1 the problem is...i don't plan ahead, Lily have you asked them to take you out once in a while? we have somthing similar here to Jo Well, start planning ahead *** Ray-1 has joined #Disabled i never want to admit i can't drive until it's too late welcome ray yes, jo, but most work lily, do u have anyone who can take u out welcome to Gimp land plan plan plan hi ray i'm lucky to have a close friend who has flexible day schedule Oh that would be nice Jo... we have something like that, a little more expensive, but you have to call 24 hrs. in advance, and you don't get to choose the time. They pick you up whenever they can fit you in the schedule. *** ts_oz has joined #Disabled Hi, sharon. Hi, anna. he has taken me to so many doc's appt. and tests how are you ray? suze, you are disabled, not helpless, you have still plan your life, you budget and your schedule. You still have responsibilities to yourself like everyone else. Cant; use the disability for an excuse to get out of things. So even if you can plan ahead, they kinda make it difficult. i don't Exhausted. Too much work. 1 or 2 sue, but not often, they have busy lives Oh Kit we sign up for time slots a week ahead. And they go to the big city once a month for big shopping with the van full. home now though ray? i just ...sometimes i get stuck i prefer to transport myself whenever possible do you have anything yu can do from home suze - making calls - helping others - i know that helped me get out of a slump and to not infringe on others o , i am working stuck or dont want to admit that u need help sue? Fortunately, yes. Hi i'm just saying when i get really sick i have a problem that's good ray...welcome home that's good Hi Ray suze you aren't infringing most of the time people are glad to help. They like to do good deeds too. yup, sue, i feel like im begging if i ask too often a little of both brian *** ts_oz has left irc (ts_oz) Howdy snow. yes, but i know how busy their lives r too agree, sue how about getting asked to go shopping - and then you mention well i will need to use my chair - and then you get well maybe we should just stay home And you would rather sit and have a self-pity party than ask for help? Bad attitude, got to get out of it. My rule: if idont need it i dont ask, if i need it i ask anyone who will listen lol, anna thats how i got puter now im lol lily Anna their problem not yours. wacky at bargain prices :) how have you been Daniel? bought from friend for $650 good rule wacky, im doing it more and it works yes now i know - but suze has got to find that place herself I have the quickie for going in other people cars, lighweight and easy to put in and out. i wish jo - mine is a tank heheh I love my quickie Jo ;} We all go through these stages and feelings suze. You aren't the first and won't be the last. i love quickies too - sorry had to lol lolol sue has to realize every one needs help AB's most of all lol, anna tks brian If ferret ever tried to give me a quickie i'd say no. I want it all or none at all. lol true, wacky welcome sam :o) go jo lol tks dirty old lady I am Iam. ditto jo suze everyday yu have to tell yourself that life is a gift - and the challenges just make us appreciate that gift more anyone get housebound in winter by snow and ice?? suze, work on self confidence, love of yourself, acceptance of your situation and ways to change what you don't like in life. I get housebound by cold me lily - stinks doesn't it - but this will be my first winter not completely bound in wheelchair Lily snow and ice are brutal. Doesn't happen much in my part of Texas but the cold winds can keep me in. All i am saying is that at times when i find myself housebound for extended periods of time Wheel chair gets so cold it freezes my hands. as in recent bought with uri, i have a rough time normally, i am out living my life same here, sue, in winter esp. * Anna invents seat warmer for everyones chair - plug it in, plug it in i go out often, i socialize, i work I'm not sitting here feeling sorry for myself i am doing a lot of things But when you get sick you feel even more down. Not unusual suze. We all feel that way. i just have difficulty asking for help true, jo that's ok at times suze - you have to realize we all go thru that - part of the challenge I crawl into the bed pull up the blanket and tell ferret go away and don't talk to me. my whole life i have taken care of myself, tough asking for help from others sue, i did at first, easier now me too suze - now i just bark orders hehehe yes, well...i am making adjustments *** LOG CLOSED: Wed Sep 30 19:02:42 1998