*** LOG OPENED: Wed Jun 30 17:58:36 1999
---
Participants:
  disabled
  ChanServ
  Lily
  Lonewolf
  Reader_13
---
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<ROCK-> welcome kim 
<Kim^^> :) 
<Lonewolf> Is anyone else coming? 
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<ROCK-> not too many lonewolf 
<Lonewolf> ok 
<Lonewolf> Hello eveyone 
<Lonewolf> welcome to tonight's meeting 
<Lonewolf> Our topic tonight is epilepsy 
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<Lonewolf> and ROCK has agreed to give the meeting 
<ROCK-> yes 
<Lonewolf> So ROCK I am handing the floor over to you 
<ROCK-> thank you lonewolf 
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<ROCK-> lets wait a couple of miutes,before i start 
<ROCK-> welcome wacky 
<ROCK-> welcome woz 
<ROCK-> welcome T_J 
<ROCK-> welcome angel 
<ROCK-> well shall we start 
<ROCK-> ok 
<Lonewolf> go on 
<ROCK-> how many of you have epilepsy 
<Kim^^> i 
<Mooooooo> me 
<ROCK-> I would like to open the floor for questions 
<wacky> not I but had bad siezure all last summer found 
    out was meds causing it 
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<T_J> Thwy think I had when little, but no seizures or 
    anything, just suspect brain waves. 
<ROCK-> that is one of over 30 ways to have a siezure 
<wacky> was a scary ex perience 4 months b4 the discovered 
    prob 
<ROCK-> thereare many ways to have an attack 
<Lily> desribe some rock? 
<ROCK-> Gran mal,is a large siezure,where the whole brain 
    is affected 
<ROCK-> yes lonewolf 
<Lonewolf> is this the type you have? 
<ROCK-> yes 
<Lily> u get a nap? 
<Lily> after the seizure? 
<ROCK-> thats for sure,until you wake up and feel like a 
    truck hit you 
<IrishGen> what are we talking about? 
<Lily> ew 
<ROCK-> epilepsy 
<ROCK-> wacky 
<IrishGen> Oh 
<ROCK-> wacky 
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<wacky> i had petiet mals but most said that id disapear 
    and I had time lapse when I CAME BACK 
<ROCK-> the causes of a siezure is really a guess by most 
    doctors. 
<wacky> Its a whole summer I cant recall 
<ROCK-> reader13 
<Reader_13> Are there any long range effects? 
<ROCK-> yes,me for example should not be in a stressful 
    situation 
<ROCK-> Ki 
<ROCK-> Kim 
<Kim^^> i have both grand mal and petit mal 
<Kim^^> grand more often 
<wacky> I cant remember last summer 
<ROCK-> me too,did they pin point what triggers yours 
<IrishGen> bbl everone 
<Kim^^> me what triggers i don't know that they ever did 
    but i iknow lots 
<ROCK-> ok glad you stopped in 
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<Kim^^> no sleep is a guarantee 
<IrishGen> Thank you ROCK 
<ROCK-> not at all 
<IrishGen> Goodbye 
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<ROCK-> yes T_J 
<T_J> What different types of epilepsy are there? 
<ROCK-> There are at least 30 types known so far 
<T_J> I have head of genetical, but I know there are 
    others too. 
<ROCK-> some people can't look at flashing lights 
<ROCK-> Kim 
<Kim^^> 30 different types of epilepsy or types of seizure? 
<T_J> epilepsy 
<ROCK-> seizures 
<ROCK-> anny 
<Lonewolf> Excuse me 
<Lonewolf> ROCK? 
<ROCK-> yes 
<Lonewolf> would you like to stck to the rules 
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<anny1> i have partial complex(petite mal) and have had 
    grand mal 
<Lonewolf> if so I will enforce 
<ROCK-> yes,i think weshould 
<ROCK-> ok 
<Lonewolf> ok rules in effect 
<Kim^^> repeat rules please 
<ROCK-> yea 
<Lonewolf> type ! for a statement and ? for questions 
<Lonewolf> ROCK will call on you 
<ROCK-> right 
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<ROCK-> does anyone have a question 
<ROCK-> T_J 
<T_J> Anyone heard of the ketogenic therapy? 
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<ROCK-> Reader_13 
<Reader_13> What types of medication are in use today for 
    epilepsy? 
<ROCK-> it depends on he person 
<ROCK-> lonewolf 
<ROCK-> you have a statment? 
<Lonewolf> I have heard of ketogenic-long time ago-why don't 
    we all let ROCK start his presenttion then ask questions 
<ROCK-> sounds fine to me boss 
<T_J> Ok with me... 
<ROCK-> Epilepsy is greek for overcome 
<ROCK-> Brain cells have electrical currents going through 
    them 
<ROCK-> when the current is affected a siezure may start 
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<ROCK-> flashing lights,certain sounds and too much stress 
    are good causes of a siezure 
<ROCK-> People look and act as normal as anyone on the 
    street untill something triggers a siezure 
<ROCK-> yes lily 
<Lily> is christmas a bad time then? 
<ROCK-> yes 
<ROCK-> and being a speaker can kill you 
<ROCK-> :) 
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<Lily> lol 
<ROCK-> does anyone have a question,or comment? 
<ROCK-> lily 
<Lily> what do you do if someone is having a seizure? 
<Kim^^> !' 
<ROCK-> that depends on a number of factors 
<ROCK-> Kim 
<Kim^^> no go ahead i forgot sorry:( 
<ROCK-> ok 
<ROCK-> epilepsy is still a subject doctors are studing 
<ROCK-> Lonewolf 
<Lonewolf> Stay calm-keep the persons head turned to the 
    side do not force anything into the persons mouth this is 
    for grand mals 
<Lonewolf> time the seizure 
<Lonewolf> and if it is prolonged call 911 
<ROCK-> anny1 
<ROCK-> comment anny1 
<anny1> it is a common myth that ppl will bite or swallow 
    tounge 
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<anny1> often bite tounge acltally 
<anny1> actually 
<ROCK-> that is so missunderstooh 
<ROCK-> d 
<ROCK-> Reader_13 
<Reader_13> What is considered prolonged? 
<Reader_13> In timing the seizure... 
<Lonewolf> no breathing for over 3 minutes 
<ROCK-> up to a minute and a halfis not unusuall 
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<ROCK-> question Anny1 
<anny1> i would like to know what type of aura's you guys 
    have? 
<ROCK-> I have none myself 
<Lonewolf> My son used to say he had a funny feeling 
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<ROCK-> Angel_27 
<Angel_27> I had 2 friends a few years ago and they had 
    epilepsy, and their seizures seemed to be caused by stress 
    more than anything else 
<ROCK-> yes,mine are also 
<ROCK-> Kim 
<Kim^^> thi thought i had an aura but the doc said it 
    was a smallwer seizure 
<ROCK-> anny1 
<anny1> stress and lack of sleep cause most of mine 
<anny1> and 
<anny1> sometimes i have a strange smell 
<ROCK-> Kim^^ 
<Kim^^> stress ay trigger one but lack of slee[p alllllways 
    trigger a series 
<ROCK-> intrepid 
<intrepid> I rarely have them, but when overtired or when 
    I see a flashing commercial, they'll come on....I had 
    trauma-related ones for years 
<ROCK-> that seems to be one thing us epileptics have in 
    common,stress,and flashing lights 
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<ROCK-> anny_! did it have a metal taste? 
<Kim^^> nite 
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<ROCK-> 65% of siezures are unknown 
<ROCK-> Woz 
<Woz> what is the metal taste 
<ROCK-> when I am about to have a siezure I taste 
    something like metal,or the detist office 
<Woz> k 
<ROCK-> T_J 
<T_J> What different kinds of treatments are there? 
<intrepid> I always have tingling in face 
<intrepid> and a sudden increase in amount of sugar I eat 
    can give me auras 
<ROCK-> mostly a medical mixing of different medications 
<ROCK-> Woz 
<Woz> anyone elce have a metallic taste b4 
<ROCK-> Reader_13 
<Reader_13> What is auras? 
<Lily> is the open brain surgery of help, where patient is 
    awake? 
<T_J> Sounds risky... 
<ROCK-> it is for some 
<ROCK-> yes,very risky 
<intrepid> auras are feelings you get b4 seizure 
<Reader_13> Thanks... 
<intrepid> np 
<ROCK-> Like a lite that flashes,after you have that same 
    circle of lite 
<ROCK-> Again not everyone has this 
<ROCK-> can someone here share their experience 
<ROCK-> Who else here has siezures 
<intrepid> mine were related to undisclosed abuse, with 
    disclosure, they disappeared, although I do have CP and had 
    them from that as well 
<intrepid> but infrequently 
<ROCK-> Thanks intrepid 
<intrepid> :) 
<ROCK-> Lonewolf 
<Lonewolf> My son had seizures for years from a cyst in 
    the right temporal lobe 
<Lonewolf> he ranged the whole gamut from grand mal to 
    temporal lobe siezures 
<ROCK-> Did he have surgery 
<Lonewolf> yes and has not had one since except a possible 
    one during a tatoo 
<intrepid> oh wow 
<ROCK-> Does anyone here have them from stressfull 
    situations 
<intrepid> I did, I was having them 14 hours daily 
<ROCK-> So even a tatoo caused him to titen up an have a 
    siezure! 
<intrepid> dropped out of high school for a year 
<intrepid> then started college 
<Lonewolf> pain induced 
<ROCK-> Very interesting,pain indused is a little 
    different,thanks 
<Lonewolf> welcome 
<ROCK-> would sombody share with the group about gran mal 
    in their lives! 
<ROCK-> Lonewolf 
<Lonewolf> second hand my son 
<Lonewolf> we stayed terrified and he stayed angry 
<Lonewolf> when he took pheno barb it was a nightmare 
<Lonewolf> totally different personality 
<Lily> night all 
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<Lonewolf> he wanted to do everything the doctor said he 
    couldn't do 
<Lonewolf> esp drive 
<ROCK-> thanks 
<ROCK-> Woz 
<Lonewolf> he lost his childhood memories after surgery 
    until just a couple of years ago 
<Woz> thanks rock bye all 
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<Lonewolf> some things he still doesn't remember 
<ROCK-> yes angel 
<Lonewolf> ROCK desribe yours 
<Angel_27> rock, u said yours was caused by stress right? 
<ROCK-> some,yes 
<Lonewolf> does anyone have anything else? 
<Lonewolf> Thank you ROCK 
<ROCK-> strob lights will cause me to have one in less 
    than ten seconds 
<Lonewolf> enjoyued the meeting 
<Lonewolf> round of applause for ROCK 
<Lonewolf> meeting is closed 
<Reader_13> applause... 
<ROCK-> I think I'll have a siezure now:) 
*** LOG CLOSED: Wed Jun 30 19:10:04 1999