*** LOG OPENED: Wed Feb 24 18:58:49 1999
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Participants:
  ChanServ (nanook@eskimo.com)
  disabled
  Mooooooo (azdse@uswest.net)
  Kark
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<Lonewolf> Daniel-where is Laura? 
<Mooooooo> she will be here momentarily 
<Lonewolf> ok we'll wait 
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<Lonewolf> there she is 
<WonderW> hi guys 
<Lonewolf> so you have already started it? 
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<Lonewolf> Hello everyone 
<Lonewolf> Tonight we have a guest speaker 
<Kark> hello 
<Lonewolf> Our own Wonder Woman 
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<WonderW> , tonight's meeting is on Cerebral Palsy, which 
    is my disability 
<Lonewolf> I have responses to the questions from Lorraine 
    Lavorata and from my son 
<WonderW> cool, that should help 
<Lonewolf> anyone that is a slow typer please add st to 
    your nic 
<Lonewolf> for a statement type ! 
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<Lonewolf> for a question type ? 
<Lonewolf> and WW will call on you 
<Lonewolf> any questions? 
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<WonderW> brb 
<WonderW> sorry 
<Lonewolf> ok Laura I'll turn it over to you 
<Lonewolf> oops 
<WonderW> really late attendant 
<Lonewolf> whwnever you are ready 
<Mooooooo> attendant was supposed to be there an hour ago 
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<wacky-ST> Then she doesnt attend to her job much does 
    she? 
<WonderW> ok, sorry 
<Mooooooo> interviewing 
<wacky-ST> understand 
<Lonewolf> go ahead ww 
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<WonderW> anyway, CP is caused by damage to the brain 
    before or during birth 
<WonderW> it is basically a lack of oxygen to the brain 
<atrpilot> were you born with it or did you get it at a 
    later time? STa 
<wacky-ST> ! 
<WonderW> I was born with it 
<WonderW> was born two and a half months prematueely 
<Kark> Do you know what's the most common reason for loss 
    of oxygen to the unborn that causes CP 
<Lonewolf> ww wacky wants to say something 
<WonderW> the extent of the damage really depends on where 
    in the brain the damage is 
<Lonewolf> kark please type ? and ww will call on you 
<Kark> oh sorry 
<WonderW> no one really knows, but it can be be caused by 
    birth trauma, Rh negatove blood, or German measles in the 
    mother 
<WonderW> during pregnancy 
<HelloKit> ! 
<WonderW> Carly? 
<WonderW> Brian? 
<wacky-ST> it (CP) can be acquired at a later date b4 age 
    5 (i was 3mos old)tho rare it does happen... 
<camille3> ? 
<WonderW> true 
<WonderW> Camille? 
<HelloKit> just wanted to say the part about german measles 
    is interesting... i hadn't heard that. it's also been known 
    to cause some cases of amc 
<WonderW> hmm, I didn't know that either 
<camille3> does it only affect the brain 
<HelloKit> including mine, most likely 
<wacky-ST> ? 
<WonderW> but amc and CP are similae 
<WonderW> Beian? 
<wacky-ST> can I inject laura 
<wacky-ST> ? 
<WonderW> sure 
<wacky-ST> interject 
<WonderW> if you want, you can do the types of CP 
<Kark> ? 
<WonderW> which was my next point 
<WonderW> Karen? 
<wacky-ST> ok CP affect the motor cnter of the brain can 
    manifest in speech balance and coordination as welll as 
    othe physical areas cognitive skills rarely affected 
<Kark> how is AMC and CP similae 
<wacky-ST> i only know 3 types for sure 
<WonderW> AmC has joint contractures and stiffness, too 
<anny1> ! 
<WonderW> anny? 
<anny1> amc and cp are similiar becouse amc can be caused 
    by brain development problem 
<Kark> really 
<WonderW> good, thanks 
<anny1> it's what they told my cause was 
<anny1> ? 
<WonderW> my CP is the spastic type, which means that my 
    legs, and to a lesser extent my arms become very stiff 
    and tight 
<WonderW> anny? 
<anny1> does cp always involve spasicity? 
<WonderW> no 
<WonderW> athetosis is a type which means the muscles are 
    always moving 
<WonderW> they rarely stop 
<wacky-ST> there are 4 basic types of CP these are: 
    athetiod (loss of all control characterized by writhing 
    movements) spastic ( laras meniotioned) ataxic (loss of 
    internal balance) and mixed 
<wacky-ST> I am mixed 
<Lonewolf> cam did you get your question answered? 
<camille3> yes 
<WonderW> that's what ppl usually think of when they think 
    spastic 
<wacky-ST> combine all four and u have me 
<WonderW> you are, Brian? 
<wacky-ST> yup u know that 
<WonderW> mixed means that a person can have two of the 
    four types 
<wacky-ST> or more 
<WonderW> yes 
<wacky-ST> in any combo 
<camille3> ? 
<WonderW> ppl with ataxia can usually walk, but have 
    trouble with balance 
<WonderW> camille? 
<camille3> are there meds you can take to help 
<WonderW> yes, but I've found that thru sometimes work for 
    me and other times not 
<WonderW> they 
<Lonewolf> ? 
<HelloKit> ? 
<WonderW> Judi? 
<Lonewolf> Brian you said you developed yuours at 3 mo-from 
    hat? 
<Lonewolf> what 
<wacky-ST> in my case I have no sense of balance that is 
    not external, i have extermlely low muscle tone in upper 
    extremities I am hypermobile, I have increased tone in 
    lower makes my legs scissor when I stand or I can over 
    evstend 
<wacky-ST> i was accidentally suffocated 
<wacky-ST> or anoxic 
<WonderW> I had scissor standing too 
<Lonewolf> IC 
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<WonderW> I had an operation at 4 to correct it 
<wacky-ST> but i can lock in an over exstension too lars 
<WonderW> Carly? 
<HelloKit> i have a friend w/ cp who doesn't have any 
    spasticity or uncontrolled movements... she can walk but 
    very bent over, knees bent, and weak - can't walk for 
    long. would this be ataxia? 
<WonderW> possibly 
<wacky-ST> ataxia and athetitosis 
<wacky-ST> mix 
<WonderW> how's her balance? 
<HelloKit> hard to tell, never seen her walk for long 
<wacky-ST> if knees bent she possibly a diaplegic 
<wacky-ST> higher tone in legs 
<WonderW> we should discuss that too 
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<WonderW> CP can be in monoplegia, which is one limb 
    affected, but rare 
<WonderW> hemiplegia is one side of the body 
<wacky-ST> no such thing as a CP para tho 
<Kark> ? 
<WonderW> quadriplegia, all four limbs 
<wacky-ST> or diaplegia 
<HelloKit> she also has cfids and fibromyalgia so hard to 
    tell what goes w/ which 
<wacky-ST> mainly legs but hands and arms slightly affected 
    but not noticed to untrained eye 
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<WonderW> diplegia is where the arms are much less affected 
    than the legs usually 
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<wacky-ST> oh we fo got one lara 
<wacky-ST> dble hemi 
<WonderW> I've heard of spastic paraplegic CP, Brian 
<wacky-ST> where a person is afected on both side but arms 
    more than legs 
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<WonderW> yeah, thanks 
<wacky-ST> miss nomer for diaplegia lara I herd it to and 
    asked 
<WonderW> oh 
<WonderW> ok 
<wacky-ST> orthos use that term 
<wacky-ST> ortho pedist 
<WonderW> anyone have any ? 
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<Lonewolf> 1. Do you have regular contact with someone with 
    Cerebral Palsy or another 
<Lonewolf> neurological condition offline? 
<Lonewolf> How has this impacted you? 
<wacky-ST> course im not as affected by cp now 
<wacky-ST> so i donno 
<Lonewolf> ! 
<anny1> ! 
<HelloKit> ! 
<WonderW> Judi? 
<WonderW> Carly? 
<Lonewolf> My son has mild cp 
<WonderW> everyone? 
<Lonewolf> we went through a lot of tests and casts and 
    special classes 
<WonderW> I'm spastic, just speak :) 
<wacky-ST> ! 
<WonderW> so did I 
<Lonewolf> he says having cp has made him aggressive 
<WonderW> yes, Brian? 
<anny1> i had a good friend in school who has cp and is 
    now a speech therapist 
<Lonewolf> because he was teased so much grrowing up 
<Mooooooo> I do! 
<Mooooooo> :o) 
* Mooooooo has frequent regular contact with someone with 
    Cerebral Palsy or another neurological condition offline:o) 
<WonderW> :) 
<wacky-ST> i was told growing up to hide as much as i 
    cld ( i cld freewalk I was shamed to think i was less 
    than .... anyone esle share that? 
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<HelloKit> i of course have the friend i mentioned who 
    unfortunately i don't have much contact with anymore since 
    she's in seattle and i'm in ri... and since moving i now 
    have chris' nephew zack who has cp caused by hydrocephalus 
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<WonderW> wow 
<Lonewolf> ! 
<HelloKit> he's 6, as of yet nonverbal, nonwalking 
<WonderW> Judi? 
<Lonewolf> This is France and I have mild CP so here is 
    my contribution: 
<Lonewolf> CP is not a disease, it is a condition. I am 
    not sick or contagious, 
<Lonewolf> I just have impairments. 
<HelloKit> he's an angel, i love him 
<Lonewolf> that's lorraine's 
<confused> Hello 
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<WonderW> cool 
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<WonderW> ok, what are common stereotypes of ppl with CP? 
<Lonewolf> Yes, myself, I have mild CP and severe 
    neurological 
<Lonewolf> impairments 
<Lonewolf> > How has this impacted you?It impaires 
    visual/spatial/perceptual abilities, balance, 
<Lonewolf> motor skills/coordination and mobility 
<confused> I wonder if anyone sees this? 
<Lonewolf> excuse me 
<WonderW> np 
<Lonewolf> confused we are in a meeting 
<Lonewolf> to make a statement type ! 
<WonderW> it impacts me that way too 
<Lonewolf> to ask a question type? 
<confused> I'm sorry I just didn't know if I made okay. 
<Lonewolf> no excess chat 
<wacky-ST> ! 
<WonderW> Brian? 
<wacky-ST> i have no depth perception have to use cane in 
    unfamiliar spots 
<wacky-ST> u know a white one 
<WonderW> yep :) 
<Lonewolf> ! 
<WonderW> I have a hard time judging how far away or 
    close things are 
<Lonewolf> Lorainne said That we are retarded, drunk or 
    slobs. Well I am one of the most 
<Lonewolf> immaculate meticulous people you will meet and I 
    also have an IQ of 
<Lonewolf> 148 and I am a college teacher and doctoral 
    student 
<Lonewolf> ? 
<WonderW> way to go! 
<WonderW> France? 
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<wacky-ST> ! 
<WonderW> Brian? 
<wacky-ST> ppl like to think i am forever 5 
<wacky-ST> i read at a 12 grade level at 9 
<confused> ? 
<WonderW> ppl do that with me too 
<wacky-ST> and have iq of 130 hows that for a mental 
    defective? 
<WonderW> sometimes it's hard not to believe it 
<WonderW> confused? 
<WonderW> exactly 
<confused> Yes, I have a question. 
<WonderW> go ahead 
<confused> I am trying to do some research for a college 
    class and I feel like I keep hitting a dead-end... 
<WonderW> on something related to CP? 
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<Lonewolf> ? 
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<WonderW> Judi? 
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<Lonewolf> I have never made the exact connection between 
    cp and adhd 
<confused> on something related to disabilities in general..I 
    want to know how ppl feel the Internet helps ppl with 
    disabilities..or if they feel it helps at all. 
<Lonewolf> confused we are in a meeting you will have to 
    come back later 
<WonderW> that would be better discussed when the meeting 
    is over 
<wacky-ST> Ppl w/ CP are at a higher risk of Ld and 
    behavior disorders 
<Lonewolf> but how so? 
<WonderW> I have a learning disability, too 
<WonderW> in math only 
<wacky-ST> now that one I cant answer 
<Lonewolf> Stuart did too and I never quite understood 
<confused> Lonewolf..this is not someone playing around..I 
    understand that you are in a meeting..perhaps you would be 
    kind enough to tell me who can help me with my search..I 
    too am disabled and want to know the answer 
<wacky-ST> i am dyslexic and adhd 
<WonderW> I think it just depends on the part of the 
    brain affected 
<Lonewolf> after the meting confused 
<Lonewolf> IC 
<wacky-ST> yep lara 
<Lonewolf> were you oth aggressive? 
<Lonewolf> b 
<WonderW> we're no 
<WonderW> no 
<wacky-ST> i am but that i think was cuz i had an older 
    sib 
<Lonewolf> thanks 
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<wacky-ST> that like to say: you cant do this cuz ur... 
    (whatever her reason was) 
<wacky-ST> good motovator 
<WonderW> let's jimp to the question on that Do you think 
    that ppl with CP are more or less likely to be 
    assertive/aggressive? 
<WonderW> and why 
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<Lonewolf> ! 
<wacky-ST> ! 
<WonderW> Judi? 
<Lonewolf> Lorraine-to some degree. People with neurological 
    disabilities are the most 
<Lonewolf> discriminated against especially in employment and 
    have the highest 
<Lonewolf> unemployment rate so lose assertiveness. I am 
    only able to teach 
<Lonewolf> college (not a steady income till I complete my 
    doctorate). Most 
<Lonewolf> neurologically disabled people like me need 
    mobility assistance, 
<Lonewolf> assistance with problem solving and judgment, 
    motor skills and 
<Lonewolf> perceptual skills and thus many employers fire 
    them and refuse to 
<Lonewolf> accommodate them. In college t 
<Lonewolf> In college teaching these problems do not arise 
    for 
<Lonewolf> me, but in all other work they do. 
<WonderW> that's really true 
<WonderW> I've found that my perceptual difficulties 
    sometimes cause me to stare ahead 
<Lonewolf> ! 
<WonderW> and ppl think I'm unaware 
<WonderW> Judi? 
<Lonewolf> Stuart's adult response has been to become an 
    aggressive businessman 
<Lonewolf> as if compensating 
<WonderW> do you think that might be because he got tired 
    of not being heard? 
<wacky-ST> i think the asserstion argressive depends on the 
    enviroment one is face with wheter coddled or taugh 
    independence and whether they are allowed to the oppertunity 
    to fail 
<WonderW> or is it innate, or both? 
<Lonewolf> not sure 
<WonderW> I totally agree there, but I think it's also 
    individual response 
<wacky-ST> i have a story if u can wait its a good 
    example 
<WonderW> so a mix, as usual 
<WonderW> ok 
<Lonewolf> bri? 
<WonderW> hmmmm 
<wacky-ST> I was abt 2, my older sis was on the couch 
    watching sat morn cartoons and I wanted up too, try try 
    try as i did I kept falling of the couch couldnt get up 
    there, my dad saw and placed me up there I screamed the 
    only word i cld say that ppl understood NO. got down and 
    kept trying he helped a few more x's but after my 
    continue defiance he gave up and left me a lone. 2 hours 
    later covered in sweat, cartoons over, and much to my si 
<wacky-ST> sorry for the typos 
<WonderW> cool, Brian 
<WonderW> good story, I like it 
<wacky-ST> been like that my whole life 
<WonderW> I know :) 
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<WonderW> ok, I have another ? 
<wacky-ST> why I became a counselor I wanted to be the 
    one helping for a switch 
<wacky-ST> i gotta jet 
<WonderW> which is What basis do the stereotypes surrounding 
    CP have in fact, and how can we reduce them? 
<WonderW> ok 
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<WonderW> we're alm,ost through anyway 
<WonderW> thanks, Bri 
<Lonewolf> ! 
<Lonewolf> Lorraine-education and seminars and listservs 
<WonderW> agreed 
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<Lonewolf> ? 
<WonderW> I think that ppl tend to think we're retarded 
    because of the visual-spatial perception thing 
<Lonewolf> ! 
<WonderW> which is often affected 
<WonderW> yes? 
<WonderW> go ahead 
<Lonewolf> I agree wholeheartdly 
<Lonewolf> can we go on to the last ? 
<WonderW> like, if I run into walls or am unable to judge 
    distances, or stare, ppl don't understand 
<WonderW> yes, it is What is the value of of conventional 
    versus alternative treatments? 
<Lonewolf> For CP treatment depends on the person and the 
    severity. For me I 
<Lonewolf> only eye surgery (CP caused ocular motor problem 
    where I was born 
<Lonewolf> with crossed eyes and now have perceptual/depth 
    perception and 
<Lonewolf> spatial deficits). I also have had physical 
    therapy. I feel 
<Lonewolf> alternative therapies are always better. Surgery 
    generally is not 
<Lonewolf> helpful. 
<Lonewolf> Special education just limits the student's 
    potential and limits 
<Lonewolf> access to math and science and lowers standard 
    so student later on 
<Lonewolf> has less access to college and go 
<WonderW> and Special versus regular ed 
<WonderW> true 
<Lonewolf> ! 
<WonderW> however, I loved Special Ed, but I think the 
    transition needs to be smoother 
<WonderW> go ahead 
<Lonewolf> Special ed sure helped my son 
<Lonewolf> he would never had made it through school 
    without it 
<Lonewolf> but he was mainstreamed after a year 
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<WonderW> there was a point after which it limited me, but 
    I never would have made it through math without it 
<WonderW> wb Brian 
<wacky-ST> hi 
<Lonewolf> Is that all WW? 
<WonderW> question is what is value of special versus 
    regular ed? 
<WonderW> any more to say? 
<WonderW> yes, if no one wants to add 
<Lonewolf> Thank you Laura that was very interesting 
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<Lonewolf> Thanks everyone for coming 
<WonderW> you're welcome 
<wacky-ST> yup 
<WonderW> sorry it went over a little 
<Lonewolf> its ok 
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<Lonewolf> it was interesting 
<WonderW> good 
<WonderW> :) 
<Lonewolf> stuart wasn't dignosed until he was 5 
<wacky> I was 2 
<WonderW> wow 
<wacky> when my parents were told docs knew at 6 mos 
<Lonewolf> he kept walking on his toes, stuttering couldn't 
    ride a bike etc 
<WonderW> I was 18 months, would have been sooner but 
    doctors afraid of malpractice 
<Lonewolf> what actually happened? 
<wacky> with whom 
<Lonewolf> WW 
<WonderW> my mom was pushed into a jewelry counter 
<Lonewolf> oh no 
<wacky> she was in her invisible plane........ 
<WonderW> by guys who were robbing the store 
<WonderW> lol 
<WonderW> and fell out 
<Lonewolf> that's aful Laura 
<Lonewolf> so sorry 
<wacky> so u wer a pre birth? 
<WonderW> yep 
<WonderW> 6 and a half months 
<Lonewolf> Stuart was full term 
<Lonewolf> difficult delivery 
<WonderW> am surprised I am not more involved 
<Lonewolf> no kidding 
<Lonewolf> I'm going over to the main room 
<WonderW> my speech was slightly affected, but mostly with 
    breath control 
<WonderW> ok 
<wacky> I was born 9 wks pre before infant respirators 
<WonderW> oh man 
<WonderW> that sucks 
<Lonewolf> oh my 
<WonderW> I should go rest, guys 
<WonderW> am spasming a little from the typing/trying to 
    focis 
<WonderW> I think next time if I do this, we should 
    abolish ? and ! 
<WonderW> makes it harder 
<WonderW> have to type name first 
<WonderW> see you soon 
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<IrishGen> Hello 
<IrishGen> what is going on ? 
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<wacky> wieght 3 lbs 3 oz at 16 in 
<Lonewolf> when the doc told me cp for stuart I just 
    bawled