*** LOG OPENED: Wed Feb 3 19:05:23 1999 --- Participants: disabled ChanServ (nanook@eskimo.com) Mooooooo (azdse@uswest.net) Lonewolf HelloKit Lily haa KimberlyM anny1 Woz adam intrepid T_J --- Welcome to our meeting tonight Sorry for being late, had trouble getting connected We have a guest speaker tonight *** zelda has joined #Disabled-RT Tobias would youplease intro yourself Ok, LW. *** Aleah has joined #Disabled-RT Iīm 21 years old I live in Sweden Please tell everyone what got you into Alternative Therapes *** wacky has joined #Disabled-RT ping me T_J? ping wacky 2sec And the disability I have is a brain-injury when I was one year old. Then, by 4― years of age, I began travelling to theUS for a treatment there. no-this is meeting toime In short =) [wacky PING reply]: 1 second - :) T_J would you go ahead with your first question excuse me a moment please Since then I have tried some more treatments too, but that was one of the best. OK LW. Are the traditional treatments the physicians tell us about the only ones? *** Bruce has joined #Disabled-RT no, I don't think so Anyone else? Hi lone how are you? sorry bruce no chat meting time Just trying to get more to join in... i never tried anything umconventional not you T_J Sometimes Docs only know about convential methods T_J would something like a TENS unit be considered alternative? I like herbal remedues eve sais; most doctors only use what is the expected treatment sometomes because they are afraid of geting sued yes, Judi probably very true also because there are no FDA regs on herbal meds they are concerned Yes, I would say so too *** Bruce has left #Disabled-RT yes that bothers me *** wacky has left #Disabled-RT i like echinechia T_J what do you think of that? however I see more and more docs getting into herberal meds and other techiniques then they us eto For alternatives, I use vitamins,minerals, green teas and restrain from animal fats, hydrogenated foods/oils, however is still very limieted *** HelloKit has left irc (Quit: Quit: sorry guys... dinner) agree helen docs do push vitamins T_J I know you had comments on this I've used magnetic therapy, ultrasound, massage. lumph node stimulation lymph Yes, LW, and I donīt think that itīs the only ones either. go on anyone else tried time release vitimins? all kinds of things I have never heard of To much the docs donīt know or care about to know. agree TJ Is it the same in country? In my country LW? and i've started using magnetic therapy for my carpal tunnel in left wrist I do find that exercise, meditation, yoga and vita mins help me and when I dont do those things 2)Should we be satisfied with what the traditional physicians tell us? and if I eat meat make me worse does magnetic therapy help? * Mooooooo works for a company called KareMor. They sell oral spray vitamins I meant the attitude toward alternative therapies sorry LW about what Magnetic therapy does seem to help me. I beleive we need to educate ourselves and our physicians eve sais i've heard that in europe that when a person is recovering from an illness that they go sometimes to a place like a spa for several weeks Good LW, Iīm new in leading a discussion like this. wo adam doing fine T_J go on but no I do not beleive we should be sasitified wiht just what the docs tell us *** Kark has joined #disabled-rt Zelda, yes, but all doesnīt want to learn... no me either zelda Laura what was the lymph node thing? I have been luckly TJ have got docs who like to learn it's a rype of massage I certainly think we are not going to blindly take in what they tell us i believe we are evolving to aplace where mainstriem med. will accept more and more of alternative therapy and eastern medicine *** Ais has joined #disabled-rt also have two docs who are real big on diet and belive that we need to be careful what we eat that it effects our health never heard of tht-did it help? used to stimulate lymph nodes and take out poisons yes Always look for another treatment if not satisfied with the one they tell you about. ok but wait a sec I'm an RN a skeptic brb *** Lily has left #disabled-rt What stimulated lymph nodes? *** zelda has left irc (zelda) if I mentioned magnets I would probably get thron off the edge of the world LOW: What have you heard of alternative treatments, since youīre a sceptic? 3)Is the western view on different disabilities and illnesses the only right one? massage, sometimes done with small machine how did you find out about lymph node stim. laura? I heard about magnet They sell the magneticpads in big department stores what about aqupunture? I went to a lady that also does colonics, several years ago, and we did it, and there's a woman in San Diego I'd like to go to *** judi has joined #disabled-rt sorry-got kicked offline *** Lonewolf has left irc (Killed (Mooooooo (ghost))) 3)Is the western view on different disabilities and illnesses the only right one? I do not think so, because, because the Western view tends to see more to the symptoms of the dis or illness. yes T_J would you wxplainthis one? not whole person quit *** wacky has joined #Disabled-RT could you explain please T_J? unfortunatly it is the only one insurance will pay for at this point *** Aleah has left irc (Quit: Quit: Quit: Aleah) *** pattio has joined #disabled-rt *** wacky has left #Disabled-RT I'm not sure about what's right or who gets to decide that...but for me what works is important. yes i think now the term is wholistic medicine OK, Judi, we in West like to believe we are the best in treating different kinds of dis/illnesses, and therefore we tend to see others as less worthy. *** Bruce has joined #disabled-rt I see T_J has anyone ever tried noni juice? you are right about the way diseases are looked at Such as the holistic medicine for example. what is that pattio? No pattio is it an herb? well I heard it is a juice from polynesia area, supposed to have a wide range of healing attributes becuase it acts on the mino acid levels do you mean osteopaths T_J? interesting Not only those judi our system is set up so that extensive double-blind studies are required for anything to be officialll accepted in the u.s. so it is far reaching and helps healing at the cellular level and like accupuncturistsetc? pattio, does the noni work for you? blood problems, conective tissue etc anny: Coming to that later. *** Bruce has left irc (Bruce) I hve not tried it yet, friends of mine are on it and I am waiting to see what they find..I am chicken!! 4) Are placebo effects only misguiding and bad? not sure Ok, pattio. Iīve heard some about it too me2 ok tj me either Laura ok good to know others have heard some about it..there is tons of info. on the internet aobut it but mostly from a selling perspective I think itīs not only for bad. Olthough some docs think so. the power of the mind is also important but have not tried it agreed adam I mean, if it removes an effect, good anny: Such as now. =) my doc keeps telling me to quit believing everything I see on the internet lol judi!!!! bio feedback works for dome things *** Ais has left #disabled-rt the brain does release chemicals similiar to opium it's important to keep an open mind but when the person sees it's a placebo, will it make whatever the condition is any less real to them? so I can see where a placebo could work if someone believed in it for like a pain med judi: To an extent. But not all on the net is bad. you mean endorphens judi? I know yes But one has to be critical about it *** pattio has left #disabled-rt adam, youīre right. *** pattio has joined #disabled-rt it's also important to be well informed about things in the medical field *** pattio has left #Disabled-RT (netsplit) *** intrepid has left #Disabled-RT (netsplit) *** Woz has left #Disabled-RT (netsplit) *** KimberlyM has left #Disabled-RT (netsplit) *** judi has left #Disabled-RT (netsplit) *** anny1 has left #Disabled-RT (netsplit) *** haa has left #Disabled-RT (netsplit) *** Kark has left #Disabled-RT (netsplit) *** T_J has left #Disabled-RT (netsplit) what happened moooooooo? split everybody just went.............poof! *** KimberlyM has joined #Disabled-RT (from netsplit) *** Woz has joined #Disabled-RT (from netsplit) *** haa has joined #Disabled-RT (from netsplit) *** judi has joined #Disabled-RT (from netsplit) *** intrepid- has joined #Disabled-RT *** anny1 has joined #Disabled-RT (from netsplit) yes even killed our bot :) it is relaxing, and gets the focus off yourself *** Mooooooo is now known as Eve *** Eve is now known as Mooooooo yes woohoo *** Mooooooo has left irc (Killed (hub.eskimo.com (irc.tscnet.com <- services.newnet.net[204.122.16.36] (older nick overruled)))) anny you said you meditate? yes about 15 min each morning i used to meditate ho? how? I have tried diff methods thru visualization *** Mooofasa has joined #disabled-rt *** T_J has joined #Disabled-RT (from netsplit) that's what i did max Back... yes we would be interedsted in knoiwing about meditation our speaker has returned it helps with pain e are on meditation now T_J relaxation, deep breathing, visualization,prayer *** suze has joined #Disabled-RT Have you continued? do you guys use music? yes Ōk, which question? meditation T_J not for meditation Aha not ususally does anyone? I find it good for a lot of things. like? relaxing *** intrepid has left irc (lost in the netsplit) *** Kark has left irc (lost in the netsplit) *** pattio has left irc (lost in the netsplit) how do you meditate? *** Kark has joined #disABLED-rt Stressreducing, focusing better... can meditation help with insomnia? not for me supposedly it debreases blood pressure increases circulation etc and I think it works!! judi, it does =) i am just about to start learning about meditation never tried it for insomnia it is similal to biofeedback can e mention bio feedback here? lol max what increases circulation judi? deep meditation I use a lot of musuc had a eye injury lacerated cornina Yes, sure why not, after all, it has with this to do Suze I recently cut all cafine, do you drink coffee or other caffenated drinks do you say anything when you do it like a preyer? took class in biofeedback years ago used bio to assist no, i don't kark brb *** Mooofasa has left #disabled-rt excercise, excercise and more excercise stimulates circulation oh, I found I was sleeping better without it a friend of mine did a master's thesis on biofeedback the dr are suprised that i have the sight in the injured that i have interesting max yes exercize helps almost everything I hear yes haa *** Mooooooo has joined #disabled-rt it is hard for me to exercise me too suze adam: No, but I think that work just as well, it helps you clear your mind, though I, myself donīt use it 7) Can visualization help? I have limited abilites but physical therapy did a world of good I use prayer a lot are there any particular meditation tapes anyone would like to recommend for someone who is just beginning this process? suze I have a good one I'll send you the name of it e-mail thank you laura, what do u do with music? T_J how is all this diff from self hypnosis i came in late i will talk to anyone in open chat on meditation & biofeedback Suze i am a quad and the types of excercise I do are isometrics abdominal and/or any other muscle tighting facial, muscles and left wrist my PT insisted on isometrics ok, yes, i hope to be in a program again next month of physical therapy in water judi: Itīs kind of self hypnotic, telling your body to do this, similar efects. yes visualization is very good I used to do that and thought it helped I listen to it all the time, pray with it, sanbce, etc are there any books any of you would recommend? i hear very good things about wter therapy dance haa don't you feel a difference used to, then why did you quit? I'll check Suze I'm doing water therapy now I dunno T_J joseph rhine banks did a v good book on hypnosis How is that working intrep? I recommend not doing it with a therapist self hypnosis? yes karen, i feel it is very beneficial...and I have a chin now :) if possible is that self-hypnosis for relaxation, meditation? suze, I can give you some tips later, donīt know their exact titles now all forms of hypnosis 8) Is it important to have a comfortable and pleasant environment containing things we like, such as pictures, music, etc. and, also, to have someone we trust, who cares about us, giving us support etc.? ok, what do u mean laura, u recommend not doing it w/therapist suze, meditaion can be used for a lot of things, for example relaxing visual meditation & hypnosis are related i have had positive experience with physical therapist water therapy used to help me a lot Visualisation, help you focus on your goal, and even helped in cancer treatment Woz: Right wish wat was here I mean that sometimes, therapists give you things to do in water, sometimes it is better to discover water yourself Why so judi? visualization is helpful he would like this conversation-he is a positive thinker he can read this Ok. I visualize a waterfall and green banks ahh, nice hypnosis is to put acertian thought in subconcious you mean llike relaxation? meditation iand relaxation are for general well being i think also for healing Everybody has their own favorite room in their mind. 9) Can diets alter our conditions? sorry that as too quick yes so thay say we haven't touched the environment question to a point most definitely yes,yes,yes yes what do u think about alternative medications? They say so, I need to find a good diet sorry, that was not topic such as, suze? its ok suze like what? well, i saw someone who recommended that i take aloe leaf pills I think itīs rather crucial to have a comfortable environment, and the rest in that question... haa you are pretty much on a pure organic diet? close judi, very little meat yes T_J and it has set my mind to thinking since I saw the question alo is best for topical i was also told to not eat bread, pasta and rice hum not rice, corn eat aloe leaves? Have we jump the environment question? why none of these suze? sorry alo for burns it's a pill aloe vera, leaf only Doesnīt matter, take it after this then. ok they said i'm allergic to those T_J do you know about aloe? and need to cleanse my system of that we keep 2 alovera plants to use as a topical ointment me too max The plant aloe? Yes i bought them but haven't tried the pills yet no the pill i want to talk to my doc firrst dont think it helps much internaly Havenīt heard of that one good idea suze hat do you guys think of the pot issue what?? anyone seen a dr of naturepathy? they specialize in alternative stuff |the drug?? marijuana? yes About diests, it can help to trim the immune defence and so on legalizing marijuana i don't do that for use in cancer patients etc ive known cancer patients who have used mj I donīt like it, and wouldnīt take it either I read that it even calms the nausea how do they use pot against cancer?! wat use to control pain i think i don't like marijuana, it ruins party's :) onl in the controal of pain the article I read said it reduces pain and nausea haa, not only that... i agree with you haaa Woz, there are other ways of doing that. k im not advocating mj i think that it has a bad rap becouse so many use recreationally I think there is a bill in congress concerning the legalization of mj as a drug I didnīt think so eitheer Woz mdwould write prescription etc Ok. Well if it helps the quality of life I guess its ok pot for potheads only I have never been around it but isn't that negative thinking also? I just cant seeing it doing anything good except stimulate appitite eve disagrees with me she sais it helps with cancer amnd aids queen ann used mj for cramps the mence thing it does that? i think if used per prescription is ok it makes you doppy Kark, there is many who would claim that it enhances the qualiyies so does morphine Karen true i think pot makes you forget about it(pain) and is not a cure Consider why it is good for nausea, etc. haa, I think so too' I've seen ca patients screaming with pain on highdoses of morphine I tried it but I didn't inhale lol I have tried it and it only mademe doppy :) doppy head :) lol let's go back to the environment question i've never tried it:( mj is not a cure it aleviatas if you can stand the smell As it affects your brain in a negative way, I wouldnīt even consider it. what was t he? Kim I've never even seen it what is the enviroment ? environment is important I agree adam 8) Is it important to have a comfortable and pleasant environment containing things we like, such as pictures, music, etc. and, also, to have someone we trust, who cares about us, giving us support etc.? in giving a person cheerfull environment it makes them happy and less sick sais eve yes do u think that plants are good for your home?? yes if you like them is it because they emit oxygen?? i agree with eve supposed to be relaxing contribute to air quality grow mold suze: Depends on if you like plants, but I definitely would say yes lol ok, just wondering what about lighting what else can u do to improve air quality in home? T_J? Yes? personall i find a lot of comffort from my pets plants good during the day not at night unless you like the looks suze's ? I haven't a clue yet pets make the world of difference tj, what else can one do to improve air quality in home? have a good wide to clean up after you agreed Karen pets are good e have an air cleaner on our furnace first of all, the indoor air, has to be recirculated 100% every 2 hours i mean a good wiffffffe what is an air cleaner? uh Hm, I donīt know what itīs called in English, but I think itīs air moisterer. pets are good fir wgat? humidifier??? Help if the air is dry lighting is important if it has a 5500 degree kelvin thing on furnace that takes out dust etc-I think hmmm no what about ionized air? this isn't a humidifier ok or air purifier? still don't understand what is an ap? is it some kind of machine? I think its what Kim said thay claim ionization is helpfull is that what an air cleaner does max? judi: Could be, as I said, donīt know the term in English i do use one of those water pitchers that purifies your water waterfall generate negative ions negative ions? All I know is the air is circulated through the air filter and the return is supposed to be better Never heard of. it takes out impurities *** anny1 has left #disabled-rt the filter has to be cleaned frequently ionic air filters are best thay thay particals in the micron range judi, it cleans pollution... trap yes house less dusty hmmm Yes that's worth exploring I have one can eaven trap bacteria drs told my daughtr to set up a room air cleaner for David do you Laura? back to the light issue yes r u saying a certain type of bulb? certain wattage daylight has a posative value in the psych areas or type of bulb true *** Kark has left irc (Quit: Quit: Quit: Leaving) so what kind is best? yes, i agree, i was just told i should get a certain kind of bulb fluorescent daylight tumes tubes Just have lights that you like. i don't have tube fixtures As for daylight Iīd prefer the normal day some of us don't get out much T_J we use fluorescent bulbs and also halogen bulbs yes, but you can open the blinds and let the sunshine in No, neither do I but at least we all have windows i'm just starting to do that I get nervous and irritable when bright lights are on fluorescent tubes come in warm white cold white daylight and growlights the but mostly we have tons of windows, so lots of natural light eve sais flurorescent lights are used to treat some types of deprtession thats true I've heard that adam Yes, I know the tubes should of the daylight type anything else on environment T_J? i've noticed at times that the best type of light is lovelight the others dont work 10) Is it only through drugs and medicines that we are can alleviate spasticity? No, donīt think so, have an environment you can reaslax and feel at home with I have dimmers on all my lights lovelights??? *** adam has left irc (adam) me too Laura-very light sensitive Thatīs good easier to control and helps calm me in evening T_J go with 10 because I'm totally dumb I'll help With the 10? go for it I think not question 10-I posted it Ok. I noticed that I've been on several anti-spasticity drugs spasticity I havenīt used any drugs, and are spastic. #10 and heat, ice, and stretching work well what helps T_J? It does intre magnetic therapies help me too Well, on the method I was on rather long, IAHP (sent a link about that) http://www.iahp.org/ cud you explain Theyīll make programmes for you, and it deals with spasticitty too *** suze has left irc (suze) what about someone like me T_J I have leg spasms from nerve damage in legs I gotta go. good-night all...and thks TJ :) sorry-meant in back i know a plastic surgeon who tried magnetics got better results from hyperbaric chamber *** haa has left #disabled-RT yes what about that hyper chamber T_K? T_J Coming to that. I think itsīs great, while I tried it. k oh o you tried it? what did it do for ou? it works for burns septic infections and carbon monoxide poisening yes I got less spastic as more blood came through to my injured parts, and it was easier to move, better balance, better response for the neuro impulses from the brain thay are doing testing at bethesda 11) Iwas it expensive? Could do and still can do, things that was impossible for me before how many treatments did you have? full size chambers are expencive in cost that might help you Laura 11) Is it true that there is nothing to do about a brain injury? hmmmm Well, letīs see, I think it was about 50 or 60, but Iīll going to continue with it in a few weeks thay are greatly used & cheeper at a plastic surgeons office is this done in the US much Ok Woz all the time for the plastic work 11) Is it true that there is nothing to do about a brain injury? Donīt think so, but itīs used more and morejudi ok T+J do you walk any? Not true. If it was, I eould be here. explain Only with support, but not good then either. nite yall If it wasnīt for IAHP, I would still be very immobile. *** KimberlyM has left irc (Quit: Quit: Leaving) hum Have to train every they in order to maintain or get better. what is iahp An institute in USA, in Philadelphia can I say something herea? sure Helps brain injured Yes Max check out the site I posted earlier k go on Laura well, I have a problem with the focus of most therapy for the brain injured because it is focused on getting better and fixinfg the prob, which has left me feeling immensely damaged so where do we draw the line? intrepid: What kind of dis do you have? Cerebral Palsy good point Laura any ideas? I struggle with this a lot T_J? Me too, but if you donīt like these ideas, just donīt mind. but what choice do you have Laura? But CP is one of those that you can get better in laura have you had a brain scan And I would recommend HBO and the IAHP. What therapies have you tried? my niece was diagnosed as cp but it was a bleeder at birth not cp water, magnetic, herbal it showed up in arecent scan but lately I've just done everything without therapists a small part of the brain just did not grow and I find it aesier but what if the chamber didn't help her? She wud feel even worse Woz: Probably of a brain injury and those occuring at birth or some time after it, clasifies as CP. no judgements on what should be I kinda kno what you mean Laura-I have taken many therapies and drug therapies that haven't helped Should? No, I wonīt say that, Iīm only recommanding things I know has helped me just made me feel hopeless k all *** Woz has left #disabled-rt 12) Are auto-immune disabilities (such as lupus etc), really untreatable? it seems toi be more healing for me, at least at this point not curable but treatable intrepid: If you like we can discuss this more later Well, I know about cases that has been well. ok, tj nothing is going to change the genetic coding in the cells intrepid: Mail? Enbrel is helping me Oh, maybe not, but the way they work HBO, for example help for lupus ntrepid@ix.netcom.com really T_J? And about MS, well, doesnīt cure it, but it takes away the symptoms, to an extent. interesting I want to get these other url's in ttp://www.fseng.demon.co.uk/hot4cp/HBO.html Hyperbaric Oxygen Treatment, good information how this treatment work, and what it is. http://surf.to/hot Hyberbaric Oxygen Trust, and their treatments. Good for brain-injured, burns, MS, Lupus, Arthritis, Post-Operative Swelling, Leg Ulcers...they also have treatments with Amino Acis and MSM, very informative site. Do you have anything else? Yes, the first one explains about HBO. anyone? Have tried the Amino Acids and MSM T_J thanks a bunch what's MSM? Hard to explain, itīs a phosphate well its late so if no one has anything else e'll close Itīs helps your cells work better T_J I can't thank you enough-I learned a lot ok Judi good meeting bye yes very productive *** intrepid- has left #Disabled-RT If you want more info, just ask bye ok bye Great you thought that =) Nice to be able to share knowledge =) excellent T_J *** LOG CLOSED: Wed Feb 3 20:52:02 1999