*** LOG OPENED: Wed Nov 18 18:04:32 1998 --- Participants: disabled ChanServ (nanook@eskimo.com) Mooooooo (azdse@uswest.net) Secrets LoneWolf CindyB MsAmazin wheels eve anny1 --- Hi and welcome to tonight's meeting As most of you know, we have been discussing healthcare for the last several weeks. Last week it was decided to extend the meetings to 2 hours because we have so much to discuss. This is a 2 part meeting. The first section will be on Handling Thanksgiving With a Disability and the second half will be devoted to our healthcare discussion. I reversed the order tonight becauseLily has some excellent tips for us and she has had the flu and cannot stay up late. 1. Lily, would you begin by telling us about the way you handle a holiday dinner? *** max1 has joined #Disabled-RT Cindy-she isn't here I see wait a minute please ok thnx *** wacky has joined #Disabled-RT Before we begin I would like for all of us to take a moment to remember our friend who died today Catee *** Kim^^ has joined #disabled-rt * Secrets bows her head in respect If anyone wants to join me in here tomorrow at 12 pm to remember her or to just talk I will be here Cindy, please reverse meeting order ok Healthcare I have sent multiple articles and URL's out. I hope that these have enlightened some of you. The latesr URL I sent gives a complete listing of US representatives, it is: http://apocalypse.berkshire.net/~ifas/activist/ A sample letter to a representative is found at: http://congress.nw.dc.us/aarp/contact.html More info on finding your representatives and tips are found at: http://congress.nw.dc.us/aarp/elecmail.html Due to the fact that this is an election year, you may want to wait until Jan 1st to contact representatives that are newly elected. *** atrpilot has joined #disabled-rt judi lily is sic ok brian I'll go slow enough for everyone to be able to read *** Kark has joined #Disabled-RT please repeat once Healthcare I have sent multiple articles and URL's out. I hope that these have enlightened some of you. The latesr URL I sent gives a complete listing of US representatives, it is: http://apocalypse.berkshire.net/~ifas/activist/ A sample letter to a representative is found at: http://congress.nw.dc.us/aarp/contact.html More info on finding your representatives and tips are found at: http://congress.nw.dc.us/aarp/elecmail.html Due to the fact that this is an election year, you may want to wait until Jan 1st to contact representatives that are newly elected. *** MsAmazin has left #disabled-rt 1. Cindy, would you please review the info on the MiCASA legislation? * Secrets raises her hand, is the Healthcare going to be first? yup MiCASA stands for The Medicaid Community Attendant Services Act. For decades, people with disabilities, both old and young,have been demanding alternatives to nursing homes and large institutions for people with developmental disabilities. Thats were MiCASA comes in. CASA would establish a national program of community-based attendant services for people with disabilities, regardless of age or disability. Our current system has an entitlement to institutional services but no entitlement to community-based attendant services. CASA is based upon these basic principales: Maximum control of the consumer to select, manage and control theirattendant services. Attendant services must be community-based, in other wordsnon-institutional. Eligibility based on functional need not medical diagnosis,disability andor age. *** max1 has left irc (Ping timeout for max1[cx13340-a.escnd1.sdca.home.com]) Services must be available in-home and other locations. Attendant services must be available 24 hours a day, 7 days a week. Back up and emergency attendant services must be available. Program must allow for co-paycost sharing for people with higherincomes. Delivery of service must include vouchers, direct cash payment,individual provider model, as well as consumer directed agency model. Health related tasks can be delegated to or done by unlicensed personal attendants. tell me if I'm to fast for anyone Voluntary training should be available for consumers. Attendants should receive a livable wage and benefits. Attendant services should be based on an agreed upon individualservice plan. *** max1 has joined #Disabled-RT *** cripfemme has joined #Disabled-RT ie. health benifits ADAPT, The American Disbaled for Attendant Programs Today, believes the above principles should be incorporated as minimum standards in any national attendant services program passed by Congress and attendant programs run by the states. ADAPT is challenging Congress and the Administration to support CASA and to make community-based attendant services areality in this country. *** Secrets has left irc (Another day, another smile, it was soooo worth it!) Any one welcome to discussion before question 2 what is the status on this bill? think floors urs Thindy From al I've read it is still at a stand still I believe the status is pending yes Before we go on did everyone read Wacky's sample letter? question yes no sample letter how would this effect people working for an agency whoi are doing home care? it gives them options eve such as? 'does this give them benifits for the worker? all the options stated above should be agreed upon if the bill goes through private one one one clients or multi clients yes eve example thx Carly has her fiancee as an attendent he gets reimbursed for that not a good mix *** rowdy has joined #disabled-rt beside the point *** atrpilot has left irc (atrpilot) anymore questions? not really there doing it so ends meet IC #2 Cindy 2. Do we need to go ahead and send a letter in on this piece of legislature? I live in Washington state and here there is a program called COPES and pays aides what works out to be $1.75 a hour ridiculous I have sample ok wacky baby sitters for little kids get paid more than that speak up guys spouses cannot be paid as aides sorry, I don't know what we are talking about I feel the more letters we send in, the better the odds of the bill being passed in our favor whether or not we need to send letter to Congressmen on MICASA working on it the lady who does the houswork for us, gets five thirty no benifits no medical coverage for her and acency treats her bad *** Kark has left irc (Kark) thats sad! another reason to be verbal For anyone not on the mailing list wacky is going to paste in the sample letter good ide idea *** atrpilot has joined #disabled-rt ok have it (name here) (home address placed here) Attention: Senator. Barbara Boxer California State Senate Sacramento, CA Dear Senator, I am writing to you in support of S.879 and HR.2020 otherwise known as MiCASA: The Medicaid community Attendant Services Act. Our current method of entitlement of Medicaid allows for Att (name here) (home address placed here) Attention: Senator. Barbara Boxer California State Senate Sacramento, CA Dear Senator, I am writing to you in support of S.879 and HR.2020 otherwise known as MiCASA: The Medicaid community Attendant Services Act. Our current method of entitlement of Medicaid allows for Att *** anny1 has left #disabled-rt it is great to live in your own home but its next to impossible when there is only low pay for aides with no benefits, insurance, and relief workers ok tisnt working Maybe you can resend to list tomorrow #2 that was 2 #3 any one wanting a copy email me at wacky969@pacbell.net 3 is lenghty I'll go slow go on 3. The second is the SSI-ReDefinition of Disability, Cindy? Updated October 26, 1998. ISSUE: Committee's Human Resources Subcommittee has drafted amendments to the SSI disability program that would cut off aid to many people with disabilities, especially adults with mental disabilities and children. I kept it short I swear House Subcommittee Plans to Narrow Access to Disability Benefits 1.Adults and Children with Mental Impairments Would Be Hurt 2.Medical Evidence vs. Functional Evidence 3.Individuals Who Live Together Would Lose Income 4.Stricter Criteria for Children 5.Prospects for Action Action Needed Now! Contact members of Congress (whether or not on the Ways and Means Committee) to head off the entire package of cuts in federal disability programs. *** atrpilot1 has joined #disabled-rt ok the SSI def of Dis is: any impairment that greatly impeeds the major tasks of dialy living which leads us to question #4 *** Kark has joined #Disabled-RT 4. Same as question 2 *** atrpilot has left irc (Ping timeout for atrpilot[centralia49.midwest.net]) ? no why? Should there be a letter sent in reguards to the SSI? Charrlie? yes why no? how would this effect a married couple? we are already getting less because we live together oh well, maybe some other time, sheesh *** rowdy has left #disabled-rt *** cripfemme has left irc (Read error to cripfemme[mid-qbu-nqy-vty55.as.wcom.net]: Connection reset by peer) I believe it would ee then u not affected don't think so Bri? this is for ppl who not already cut seems to me, the more in the household,the more you should be able to receive.. *** Kark has left irc (Kark) actually what they do is lump the sum wacky could you elaborate logic in government:)? doesn't happen sure in instance where comple is married a men kim the combined inc is cut aprox 200 and then lumped into one check but passing this bill would change that? what would it be if you were living seperately then? but if two ppl not married live together is not combined Oh... *** Xova has joined #disabled-rt *** Driveshaf has joined #disabled-RT full amount of one disable physically is abt $650.00 *** quad_fem has joined #disabled-rt how can we live if we are cut by two hundred? would this be two hundred more than what we are geting now? but a loop hole can always be found but how would this bill effect that? how? say two ppl living together under same roof and state and fed attempts cut? u just regester as two seperate house holds simple married? *** Xova has left #disabled-rt so if you get $650. per month, and your rent is 400. per month, and you have meds, and bills, how does one eat? Eve u and adam are exemt *** haa has joined #disabled-rt back to the bill u dont pathetic HOW DOES THE BILL EFFECT THIS and dont tell em about food pantries either or they count against u married combined amount is 741 dollors. would we be cut more? OK....as LW stated eve is asking about bill HOW Does The Bill Effect this?? wacky? and Cindy? married couple already cut so they are exempt from new bill this is for un married couples no eve u stay same Well the SSI bill states it is for cut income ?? If the SSI bill is passed, the won't allow cut income on individuals who live seperate or together what they are trying to do is spend down the amount they cash out elaborate please if this passes it will affect couples who are unmarried and live together for bad? no one else yes for the worse *** quad_fem has left irc (Leaving) group-for or against agianst the change so we need to send in our opinions to the legislators? Correct? yes cindy yes but the question is are we for or against this bill? all agreed? agianst SSI bill Cindy-we need to know what we are wanting for MiCASA aye for Micasa not for SSI What is your opinion on both bills LW? *** atrpilot1 has left #disabled-rt Charlie? eve? helen what u think? Dony? Yes, I want MICASA SSI? for micasa, but against ssi bill, Kim? max? micasa yes ssi no wheels you said aye to which? If we all send in letters for or against these bills, just how long will it take before we get any effects? we can send in letters or e-mails will prob get automated response back with email we will get a response quickly but will be form letter hey idea phone calls work best go on.... what if we drafted a group letter on both issues then each of us send it to our legislatures? ssi=no, micasa=yes thats a good idea um not really let me show u why that is a good idea why Bri?? we can sign our name and put something like member of disabled online group why? if we all sign same letter fewer letters then less response that is true no all send same letter-separretly not if we all send copies to our own legislators? Kim and I would send to Ky *** Driveshaf has left #disabled-RT best trick ( ive done this b4) is to flood offices whih a lot of letters and what happened wacky? we should also send letters to news papers we decided against that last week ok can do call all ur gimps can be a basic letter volume counts here ppl listen *** cripfemme has joined #Disabled-RT wacky get us a final draft we can use for both bills and post to list-ok? each of us can copy sign and send ok will do contack independant living centers and see what they are doing in ths regard ok helen I would really like to hear what you are thinking *** max1 has left irc (max1) good idea EVe everyone agrees on all these wonderful ideas, but when?? this week? helen???? next week is Thanksgiving-many will be off true everyone agree by Fri? i can post both on list tmw yes, i am here, I am for micasa and against ssi any other thoughts on the subject? *** RealAnna has joined #disabled-rt i was off a while, wonderful ideas for what? before thanks giving yea govt sux evening everyone we are planning a letter to legisators this week Ok before we move on-anyone not on the list? cf isnt I have a ? i don't believe im on any list it would be nice if we could find several disabled people from the states to sign the letters as well. go helen ok haa m2, not on list i can help with PA folks great please go to web site http://member.tripod.com/~disabled Why do we need to do it this week and not after Thanksgiving? *** wheels has left irc (Ping timeout for wheels[annex248-15.bmi.net]) ok martina u know how to do this nope i taped into a place where i mighgt find disabled people in other states but i cannot get it out before kill a turkey day to all those people you think we need more time Helen? who is helen? ok-week after Thanksgiving? haa k sure u know how to write ur legistslators will send u a sample martina *** x[NiTrO]x has joined #Disabled-RT ok lets move on to a brighter subject thanks, wack Question 5 was wacky's sample letter wacky why not post an example on the web site Lily had some tips for us and she isn't here so I will fill in as Lily ill ask mooooooooooooo k good idea Real Anna *** In- has joined #Disabled-RT Cindy paste away * wacky hands wolfie sheeps clothing ok LW, you are Lily.. As most of you know, we have been discussing healthcare for the last several weeks. Last week it was decided to extend the meetings to 2 hours because we have so much to discuss. This is a 2 part meeting. The first section will be on Handling Thanksgiving With a Disability and the second half will be devoted to our healthcare discussion. I reversed the order tonight becauseLily has some excellent tips for us and she has had the flu and cannot stay up late. 1. Lily, would you begin by telling us about the way you handle a holiday dinner? uh didn't need that first part *** In- has left #Disabled-RT ooh ok for those who came in late guess I am out Lily has devised a plan that is great thanks for the update she starts several days before a big dinner or get together sets table one day does salads one day cooks meats one day saves veggies for actual day ANYONE ELSE HAVE A GOOD PLAN oops 2. How do the rest of you handle Thanksgiving? lol I dont no reason join/ #disabled wacky what do you do on holidays? We call Waiters On Wheels and voila turkey dinnner appears. :) its /join #Disabled that sounds like a good plan, but i cant even keep up with laundry let alone do a big dinner - and im really depressed about it - for last 16yrs of my 18years of married life i had thanksgiving dinner with both families at my house now i cant do it i have an idea. ask everyone who is coming to bring a dish of some type of food and coordinate with you what it is thanks i heat up my dinner like any other night cripfemme. click the link at the top of the page my grandmother has hers catered also *** cripfemme has left #Disabled-RT RA could you do like eve suggested? the problem isnt the food - it's getting the house ready and all the confusion and too much on my feet no reason to see family *** ^Raven^ has joined #disabled-rt that's my problem RA Cindy tell them our set up 3. Cindy, would you share with the group our family's way to handle big dinners? yes Thanksgiving at the Burch's: Due to the fact that Judi is disabled and can't They are all at my house to tolerate being on her feet or out of her bed for a long period of time, the children and the childrens spouses do Thanksgiving at the Burch's. Judi's husband is allergic to poulty, so he usually cooks a ham every year. RA have you heard of Maids O n Wheels? . Do to the turkey lovers in the family, Cindy cooks the turkey (and chases her father-in-law around the kitchen trying to rub turkey on him.) Jennifer, Judi's oldest child usually volunteers to cook vegetables and dessets, but bless her heart, she just isn't a good cook, therefore we try and persuade her into bringing more simple items: napkins, rolls, and other not so perishable items lol