*** LOG OPENED: Wed Sep 24 18:04:38 1997 --- Participants: Disabled (disabled@lawgiver.megacity.org) HandiBot (disabled@trantor.student.utwente.nl) ChanServ (nanook@eskimo.com) Mooooooo (dse@pacific.net) DopeHat (khodgdon@ionet.net) HelloKit (carlym@u.washington.edu) Riverboat (netman@cyber-quest.com) Countrybo CincyKid (AMCgroup@support-group.com) Mimi (mimi@lino.com) Mooooooo via Telnet (dse@pacific.net) Mooooooo via Telnet (dse@pacific.net) --- does it hurt when you walk like that? whats wrong my back, Keith :o( 9:00 pm here now *** CincyKid is now known as Catz Guess what everyone! My first meeting in almost a month!!! hello Catz :o) you need to pop that thing out mimi welcome back Carly :o) Catz :o) LOL Keith So are we all ready to start? hello everyone GO *** Pyro has joined #disabled 6 weeks, Keith yep hello Jeff :o) You guys want me to use caps today or no? color *** Pyroircii has joined #disabled Color, okie-dokie. color color red it's a pitty my ircii client can't convert colors :( Do you often get looks and stares from other people? hell yes yes all the time yes i dont even notice anymore is that ok? about 50% Sure, CB not if I'm not pregnant hell i got wierd stares before i had a wheel chair lol lol Do most looks come from kids or adults? LOL both BOTH both atleast kids have enough guts to ask! most of mine come from kids *** coral` has joined #disabled but adults make the dumbest comments Coral :o) * Countrybo doesnt mid explainin to kids who ask or they run and hide hi Mooooooo :) That's true, CB hi Coral LOL hello coral :o) hi Riverboat :) hi Mimi :) brb *** Mimi has left irc (Leaving) Hurry back, Mimi We'll miss you Mooooooo, do they really or does it just seem that way because you expect them to know better? Nope, they really do The last comment was hiking up to Nevada Falls they really do try high school kids *** Mimi has joined #disabled I passed this old couple and one says to the other 'hey, that lil crippled boy is climbing the mountain' Does anyone have any witty remarks to use on people who stare? slow down :o) LOL How old were you? Sorry, that was an accident. highschool kids are not as bad as adults the older they get, the worse they get take a picture, it lasts longer yeah Dan: that would be opposite here like CB said, at least little kids have the cahonies to ask good one! hey did god really give you such a dirty look? old people talk and treat me like a little kid that right *** judi has joined #disabled do they call ya brave? hi judi :o) hello judi :o) old people should know better hi yeah they should one person said you have a lot to deal with lol like I have a choice??? but they're set in thier ways some younger ppl talk down to me too I live in a big apartment building lots of old people there, all they do is stare and 'goosip' 'gossip' typo I know what you mean coral... for the longest time my younger sis acted like she was in charge of me... as if I couldn't make my own decisions. that's how i get treated and store clerks talk sometimes like i'm a little kid what's the question? I had a ex that did that it's really irritating then when ya get mad, they think you're rude treat me like a kid judi, the question is: Does anyone have any witty remarks to use on people who stare? * Countrybo loves to zip down the store aisles in my amigo at top spead lol people hate that lol picture time people 'keep your eyes to yourself' mine is 'you got a prob *sshole?' I have to tell you guys this story... some of you may have already heard it. good one that's a good one Mooooooo People stare at my Rascal too i like to just stare back and x my eyes lol make a face at them *** Chiquita has joined #disabled actually lately i am just so darned happy to be in the damn store who cares if they stare!! My friend Jessi was in the grocery store one day w/ her mom when she was about 2 yrs. old. This lady starts staring at her, and she looks at the lady and says, 'Hi, my name is Jessica Aaron. I have arthrogryposis multiplex congenita, what's your problem?' The lady's jaw hit the floor. tell them 'Who you staring at, stupid' lol People, especially clerks, talk to my husband instead of me, like I can't alk if I'm riding. He always says, She can talk. why confroont them? *** Chiquita has left #disabled just look at em and say yup you look pretty normal to me lol lol I loke that Countrybo i hate that hey you want people to just turn their backs in stores and look the other way? I confront them to show them they are being rude *** Lao-tzu has joined #disabled sounds like alot of yas are out there makin enemies lol hey han :o) hi everybody *** Char2 has joined #Disabled Has anyone ever come to you and asked a question or made a remark regarding your disability that you thought was stupid, strange, or even funny? wooei big crowd tonight! yes a) does it hurt ya i get that alot b) Are you and your older sister twins? *** rowdie has joined #Disabled LOL but now sometimes it does hurt :( someone came up and rudely said 'what happened to you' in a demanding way and i said 'nothing' c) what kind of accident were you in? I read one on AOL: 'Perhaps if you soak your legs in a nice hot bath, you'll walk.' what happened to your legs I can't stand it when people who know I have epilepsy use the term 'epileptic fit' to describe someone who got really mad or lost it that is sad There was an older clerk in a sewing section of our local Walmart who always stared. Finally she asked my husband, 'What's wrong with her' even though I had talked to her several times. I avoid going in there now. even if they don't know I have epilepsy, for that matter! :o) Well I told ya all about my car incedent i didn't hear it Mooooooo me neither, moo the car deal wasnt very nice to me dealer i've had people ask if i lift weights will i get stronger wanted to do the business with the friend who was with me ROFL Keith hey mimi i saw sopmethin neat on tv about epileptic kids havin trained dogs that can sense a seizure comin on and can warn the kid so they can lay down and prevent gettin hurt! i though that was neat! wow, that is cool! I went across the street and bought my new car from the other dealer and paid cash for it nice when you have fair warning :o) *** Ray1 has joined #disabled i had a teacher say i was lazy hello Ray1 :o) what did you do say to the rude dealer Mooooooo sheesh they said the animal can sense electrical or chemical changes that occur just befor a siezure I saw that too, countrybo, it was interesting that's amazing, wow say Mooooooo, will you adopt me and buy me car? i didnt have to say anything :o) I dadn't heard of that i was amazed i've seen that i just saw it this week lol My trouble is if I answer that I have arthritis I usually hear, oh everybody has arthritis. Like everyone has debilitating arthritis. oh man that sucks there is a guy that lives behind me with a seizure dog that has to beverypainful uninformed My mom gets that attitude too, judi. Ticks her off. cool coral Yes itis countrybo. maybe you could get some info for mimi? maybe you could get some info for mimi? coral??? i have had peole ask if i realy need a wheelchair I've even had people tell me to go buy some ibuprofen! well, I havent had a grand mal in 7 years and I don't plan to start up again soon :o) i have that too judi and they always say they never heard of arthritis putting someone in a w/c * Char2 has Rhuematoid Arthritis (RA) and is in a wheelchair, 6 years people ask me if i can walk at all Yea, I hear that too Congrats mimi! thanks ;o) Did anyone have a good comeback for a remark they received? i have a niece that has atleast 3 grandmalls a week can opps that's terrible that's tough, CB its tough but thats life eh? I need a good comeback can you guys see me? I have Moderate CP and I had a DMV clerk ask me 'what's the matter with your hand?' yup rowdie thanks, countrybo yes rowdie yes, rowdie heheh yes, rowdie yes rowdie ok, thanks, ya'll We met a kid on the bus who recovered from spinal meningitis and has 1-2 seizures a week. tell them it's none of their business * Countrybo thinks he just wanted attention lol j/k I've heard of kids having 75 per day He had two during the trip, in fact. Thankfully they were both during rest stops. oh man when they screened her for surgery they spent a weekend triggerin multiple siezuers in the hospital :( awww, poor thing and she didnt qualify :( that's tough, cb Oh God what a pain... everytime they mess with her medications it messes her up My son had brain surgery when he was 16. He had a cyst in the temporal lobe. Before the surgery he had multiple seizures daily. Afterwards, not a one. it's hard for some people to find the right balance sorry lol yall been thru this and worse i bet *** phoenyxx has joined #Disabled heya Simon :o) sorry I am late neurologists don't seem concerned at all :-) Hey Simon. hey carly Simon, got a good comeback for a stupid comment? hi Simon hi phoenyxx good comeback for a stupid comment? depends on the stupid comment :-) *** Mooooooof has joined #Disabled people ask me if I can walk after I tell them I can't, I tell them, sure, just give me a ticket on the space shuttle :-) ya they wanted another muscle biopsy on my boy so we drove 4.5 hours one way just for the other doc to say why? i dont think he needs one! geee why didnt they just phone each other? lol *** Mooooooo has left irc (Local kill by Mooooooof (who ya gonna call?)) that'll work *** Mooooooof is now known as Mooooooo What are the most common questions/comments made to people with disabilities? my favorite has always been, upon seeing my chair, 'how did YOU get a chair like that?' 'why are you in a w/c?' people always ask me if I am 'under control' *g* I say something really sarcastic like, 'I am sorry, they said it was ok for me to get it.' Whats wrong with you why the w/c how about this one? the anethesiologist asked if i was a lawyer when he was puttin wifey under for c-sect. I said no but i can learn FAST if i have to! what's wrong with you I am always tempted to say, 'not at all!' and let them sweat it LOL... no! I'm completely out of control!!! *grin* LOL CB Or by the 'religious right' -- I can cure you! i was nervouse as irt was what a dumb thing for him to say when someone asks why I'm in the chair, and I they seem a little nervous about it, I reply with 'Well, the intelligence briefing didn't cover this planet's high gravity' :-) That would scare me, CB most comments i get are from the 'religious left' lol phoenyxx that puts them at ease when they hear me joking like that. :-) always wanting to help me and they cant take a hint religious left? Cute, mooooo. i got use that one , Phoenoyx hey I believe God can cure us in his own time and sometimes we serve a better purpose by reaching opthers thru our disability Do you find that a lot of people tend to bring up religion when they meet someone with a disability? religious left, ammoral busibodies all the time my dad was in a wheelchair, when someone asked him questions like that, he always stuck out his hand to shake thiers and said 'glad you got to meet me' btw, delayed hellos to judi and Lao-tzu :-) not a lot Carly, I've seen that happen sometimes. lol rowdie actually it's weird, I've actually gotten flak for talking about my disability in philosophical terms rather than simple clinical, technical terms. what do you mean My friend Priscilla was on the sidewalk in her w/c waiting for her ride... this guy walks past her, stops, comes back to her, kneels by her chair and says, 'Can I talk to you about Jesus?' Its a tough question we all ask our selves i get ...Why me God? It's not prevalent, it just sticks in my mind. Simon, it's OK, laggard you :-) For sure, CB judi: for some reason, some people like talking about disability when I'm talking in straight technical terms, but when I discuss any 'feeling' about it, there's trouble. you know theres alot of disabled people doin God's work Carly: I get the feeling some people think someone in a chair has become an atheist or something. theres a lady missionary in malaysia handing out bibles from a wheel chair what, disabled people have feelings? *** gordon4 has joined #disabled I am not an atheist, I'm an irreverent Catholic :-) ya are disabled people realpeople? lol judi: I do anyway :-) * Mooooooo is a single 33 year old Politically Incorrect Jesus Loving Christian American Capitalist Heterosexual Pro-Life Pro-Choice Flag Waving Conservative Libertarian Environmental Reactivist and card carrying member of the NRA. I'm a darn nice guy. i am a recovering Catholic lol thats me :o) I've had a guy wanting to get me into a MLM scheme for years now and the latest one he told me he was a bishop and asked me if I wanted to be cured. So I asked him how many in the chain before me :-) phoenyxx: As if maybe atheism is what put them in the chair... coool mooo me too * Mimi is a practicing Catholic /:o) gosh, I thought we just sat around not hearing things or getting our feelings hurt Do people tend to automatically brand you as a 'good' person because you have a disability? yes Yes i think so Carly: yes! Im brave, smart, and have a certain wisdom good, but insignificant * Countrybo thinks God is not divided so i wont join a division ie a particular church i just be a christian! ROFL not the people I run over with my w/c yes Not necessarily. I like that attitude, CB I agree with roediw lol or run into with my amigo lol That's me too... I have my own set of beliefs. someone once was terribly offended with a violent segment on my access TV show, but what got me mad was that she wasn't bothered by the segment but that someone in a wheelchair could think of something so violent. hek grioocery store aisles are like a freeway to an amigo lol that got me mad. * HelloKit rolls her eyes. ...the skit was crude and smartass in nature, and I tried explaining to her that I've had a weird sense of humor long before I was in the chair. hard to reach top shelves though cb I volunteered at a center for the disabled and the lady was really suspicious of me until I mentioned that I had epilepsy, and then I was welcomed with open arms :o) and that wasn't impaired in the slightest :-) ya it is lol funny i never had that trouble when i could walk hehe * Countrybo is 6ft 3 * phoenyxx is 5ft 4 you had to be disabled to fit in? That's like my mom... she thinks that anyone who volunteers for MDA must have a family member with MD. I think we get a little defensive Mimi. You can't SEE epilepsy. I guess she was screening me, and having epilepsy make me instantly 'ok' *g* hey i am not bitter alot, of able bodied people have gone out of their way to help us out! like building a ramp! true, Judy, but I was volunteering, not joining the club yes, and many able bodied will serve the Party well in the future. :-) LOL LOL I ran into that before my arthritis put me in the riders seat actually i think its cool i can out shop my wife now lol Roosevelt had The New Deal, as President, I will dispense The Raw Deal :-) Well Mimi, sometimes people are unsure of how you will treat the clients/patients... knowing you have a disability yourself makes you a little less likely to mistreat people, y'know? At least in their minds. that's very true, Carly true good point, kit *** gordon4 has left irc (Leaving) hey, does anyone get an attitude from some people that you were a shallow person or a jerk before you were disabled? I got 20 questions on how much experience I had 'dealing with the disabled' then you became nice ? Countrybo, its hard to reach those shelves when you're 5'3' tall though i bet judi! I am taller than someone here :-) Hey, my graphics teacher in HS was only 4'11' but ya know what judi when i could walk i was always happy to help out shorter people that way! now they help me lol being as them short people can reach higher than me now lol I had a riding teacher who was 4'9' Since many people mean well when they say something funny, do you think anyone would be offended to know that we look at their remarks humorously? so was my spanish teacher We just learned my grandson has a growth disorder and will probably never reach 5'. *** Pyroircii is now known as Orp i cant help it if i roll over laughing some would, yeah...others might feel better knowing that *** Mooooooo has left #Disabled via telnet well if you cant laff at yourself and your predicaments WHO CAN???? People I've met are put at ease if they know I can laugh about things. *** Orp has left #disabled good night I have to get ready for school tomorrow One guy asked me what street gang I was in, as a bad joke, and I told him he had 5 seconds to run. nite catz I finally got my license to 'solo' with my KFOs in the apartment. Oooh, what a rush!, to be able to look the top shelf in the kitchen covert (sp?) eye to eye again. Then to take the bag of raisins and decide whether to drop them in the sinc or be adventurous and slowly place it on the counter. bye Catz! laughter is a universal langyage even for people p I knew he was kidding, and he knew I was kidding. of the same launguage lol *** Raven_ has joined #disabled *** Catz has left irc (Leaving) nite Catz Of all the remarks we have received from people, what is the funniest one you heard tonight, or that hasn't been mentioned? hmmmm am /I late Mimi? he tough one kinda, Raven :o) 'Are you ok?' *** Char2 has left irc (Ping timeout for Char2 1Cust107.max4.detroit.mi.ms.uu.net]) totally forgoy forgot even a mixed bag I think, can't make up my mind once i was getting off a bus liket wearing sunglasses and a kid asked my friend if i was blind I liked the one about soaking your legs in warm water ;o) What do you think belongs at the top of the top ten list? in a power-chair? LOL coral yeah lol bus lift i meant to say go figue *** Char2 has joined #Disabled hello Char :o) welli sometimes drive like a blind man? lol heh hi mimi Wish I could drive When I was learning to walk on canes at age 16... I had a little kid stare at me and say to his friend, 'He must be broken.' One time I was wearing all black in my black (with silver trim) chair wearing black gloves and sunglasses and someone joked 'It's Dr. Strangelove'. rather funny actually :-) lol phoenyxx I did today, I'm hyped up on mini-thins lol I told them I was off to hassle UFO witnesses. kids are the best :-) hehe i chipped out a hunk of the front deck on my cart shovelin snow. People see that and they get out of my way fast lol * Mimi chuckles I lovve your attitude phoenyxx lol judi: thank you :-) i vote that as no.1 dr strangelove lol A kid asks me how come I walk the way I walk. I said I had polio. He sais COOL! lol LOL! lol ya real cool lol cool? BRB Hurry back, HelloKit We'll miss you there's a method to this madness yet! one guy says he should get a cart he's tired of walkin I said i'll trade anyday! I've done that...someone said 'Ive got CP but it doesn't have me' and I said 'that's cool' meaning it was cool that it didn't have them, but I felt silly anyway a lot of ppl that see me in my power chair say 'i need one of those' ack! see you all later! it's 9pm here! bye Simon! :o) * phoenyxx is off to watch the season premeire of Law and Order :-) nite phoenyxx, take care night dr bi Simon lol me too coral, like we just use them for fun yeah bye simon glad I made you all laugh here, judi, glad you found my jokes funny :-) ya we are to lazy to walk bye! :-) bye ohoenyxx at least someone did, Simon ;o) *** phoenyxx has left irc (Leaving) j/k back Welcome Back HelloKit We missed you wb Carly :o) I had to go tell Chris the 'cool' one... hehe well folks its bed time g'night CB night nite CB night cb *** Countrybo has left #disabled bye CB! :o) Can anyone think of any topics for future top ten lists? not off the top of my head but i'll think about it whoops, me neither things we've had to give up judi, what type of arthiritis do you have? brb benefits of being disabled? bye rheumatoid *** Raven_ has left #disabled I thought about that one, coralk. *** Mooooooo has joined #Disabled via telnet how about things you want to do? coral sorry s'ok judi, how long have you had RA I gotta go soon too, but I wanted to let you know I'm the guy you used to know as Capwriter. oh!!!! cool Cap /:o) lol yea, that's better Lao. 12 years, degenerative disk disease 16 years judi, i have RA the positive respnses we get from people hit new highs this summer. sed rate 130 i have RA too See you, mooooo, mimi. I'll drop by during the week. take it easy. Bye, all. bye Ray! :o) see ya ray bi RAy *** Ray1 has left irc (Leaving) i have had RA over 25 yrs bye Ray *** LOG CLOSED: Wed Sep 24 19:06:49 1997