*** LOG OPENED: Thu Sep 4 01:01:51 1997 --- Participants: HandiBot (disabled@trantor.student.utwente.nl) HelloKit haa Mooooooo (dse@pacific.net) Deb Pei Mimi (mimi@lino.com) ChanServ (nanook@eskimo.com) DopeHat (khodgdon@ionet.net) Lao-tzu (jazcorp@ican.net) Mooooooo via Telnet (dse@pacific.net) --- hello Han! welcome han hi all thanks for the email yesterday! r we ready 2 start? welcome, my pleasure, hope it's informarmative yep it is, Han :o) mimi it does have a high roof I've seen it from afar, but that's it. You don't like it? *** jolene has joined #disabled hello jolene! :O) hello jolene jinx it is not comfortable but is practical :oP hello everyone! Hi jolene! is every1 ready 2 start? I am All set to go. hello jolene hi what is the topic heh... lucky 4 me i have all my q's typed out and ready 2 copy & paste What are we going to talk about tonight? Aches and Pains *** Ariella has joined #disabled Solutions topic is: 'solutions 4 those aches& pains' hi :) Fenicia! 1st question: How many experience some kind of aches or pain as a result of their disability? *** Ariella is now known as Fenicia I do * HelloKit raises her hand * Lao-tzu can feel the rods in his back Solutions to what kinds of aches and pains--temporary or chronic? whatever comes up jolene what kind of pain, mooooooo? any time i bend over for more than 30 seconds it hurts bad when i get back up * HelloKit . o O ( i hate the enter key on this kb ) I have Chronic Fatigue Syndrome/Fibromyalgia with Chronic Myofascial Pain. I experience pain completely unrelated to my disability, is that ok? i have to lay flat on my back for a few minutes doesnt sound fun, moo or jolene hi Fenicia :o) :o( technically there are 2 kinds of pain -- acute and chronic i have chronic pain and swelling in my lower left arm - my only useful arm *** Fenicia has left irc (Leaving) i get sharp arthritis-like pain in almost all my major joints - wrists, hips, knees, ankles My pain is chronic, but I've had other medical problems in the last year and a half that have caused both chronic and acute to attack at the same time. especially my wrists Has anyone asked a doctor about the pain? what's the difference between chronic and acute? HelloKit, what do you do for the arthritic pain? i take lots of over the counter pain stuff not much, jolene - i do have braces 4 my wrists mine just told me not to bend over for longer than 1 minute real helpful, huh moo? acute pain is sudden, chronic is long-lasting Chronic pain is severe and unending. It really never goes away--only the severity varies over time. Acute is severe pain that is alleviated over time, and it disappears. there isnt much else that could be done anybody else asked a doctor? acute goes away but chronic does not personally i went to my ot - she made my wrist braces My problem is that I cannot take anti-inflammatories because they give me ulcers. So I live with the pain. ok, well then I have chronic jaw pain due to TMJ Book to read: The Challenge of Pain 2nd ed. by Ronald Melzack & Patrick D. Wall my doctor doesn't know what TMJ is! thats always nice, mimi :o/ too much jibing? yeah, Carly :o) sorry :-) lol Mimi, I know what that's like because I too have TMJ problems and arthritis in the jaws. i collect natural resource sites these days could be worse - our former dr. claims fetal alcohol syndrome doesnt exist what do you do for your TMJ, jolene? I have a pretty high tolerance to pain *** luscious^ has joined #Disabled hello luscious hello luscious jinx *** ^tejo has joined #Disabled I had a doctor once tell me that if they did not teach him about a particular ailment at Harvard, then it must not exist, and he was serious! has anyone had a doctor recommend something that worked or at least helped? sheesh wow, jolene! <^tejo> hi all hey tejo not so far, Carly * ^tejo sends greetings to HelloKit lol, well i quit bending over for more than 1 minute :o) my dentist helped a bit, though I find that manipulative therapy does a good job for short periods of time. sounds reasonable, Daniel *g* what did your dentist say/do, mimi? he made me a bite splint *** ^tejo has left #Disabled tolerance is a must -- what is needed is the ability to live with pain: that is, to evolve and maintain patterns of behaviour that prevent pain from totally dominating life. If you succeed in this tou will raise your pain tolerance. what is that? I have to wear it at night, it helps keep my jaw in place when I sleep * HelloKit nods it's like a mouthpiece, kind of like a retainer thats pretty much how i handled it Han it helped but it wasn't a cure Pain tolerance can be learned over time--I've had this chronic muscle and joint pain now for 10 years. Has anyone turned to some kind of alternative (herbal, for example) treatment for pain? I tried Herbal for pain and for sleep *** kb9kyy has joined #disabled Daniel, you're right up there! all i got was disgusting smelly burps hello lol *** Pyro has joined #disabled hi brad lol moo i know what u mean! hi all hiya brad hi brad i keep adding more natural stuff carly hey Jeff *** ManwCam has joined #disabled LOL howdy cam wow...look at all the ppl *** Pyro has left #disabled I've been hesitant to try alternative types of herbal therapy because they are not regulated or standardized. hello ManwCam howdy mooooo and all what's the topic? Hi ManwCam i tried an herbal deep heat rub a couple weeks ag for a pulled muscle did it work carly? it worked 4 a while but eventually the pain came back Brad the topic is 'pain' Boy! can I talk about pain!!! Jolene: sometimes you have to stray the path of the regulated and standardized -- I had a pressure sore that I treated with 'Dragon's Blood' a resin from the bark of an Amazon tree. Scabbed in 5 minutes and healed in 1 1/2 weeks. NO standardized/regulated treatments beat that. I've found that water therapy alleviates some of the deep muscle pain I've had--but can't use it now because of seizures. has anyone used an alternative treatment that helped? i tried hitting my head on the wall, all it did was knock me out... just kidding lol brad *** jody- has joined #disabled well, putting my cup of hot coffee up against the side of my face works wonders *** jody- has left #disabled serious mimi? Hi jody i use wrist splints ordered out of a catalog that work *** jody- has joined #disabled with all of my eye problems, I get headaches out the ***, and asprins don't usually help hi everyone... sorry I'm late I also recommend not having two year olds in the house :o) brad - i may have somethin 4 u The old heating pad is always a plus for my pain. hi jody i'll keep that in mind, what do you have for me, hellokit? hi jody * ManwCam has to take off... serious, Carly :o) working on a puter bye all peppermint is supposed 2 help headaches - i suck on an altoid *** ManwCam has left #disabled heya Jody :o) has anyone discussed massage therapy? good, i've got plenty in the candy jar, i'll give that a try, tnx i use ice packs too which work heat is great for a lot of my aches and pains hey Mims! HelloKit does that work for migraine-type headaches? no comment, mimi... massage is good double no comment! but what really helps is 2 put some peppermint drops on a handkerchief and inhale thru it Moooooooo, massage is greatttttttt! seriously? if u catch em 1st coming on, jolene ......... I startedd massage therapy and it has really helped my arthritis I heard about that on the radio Carly Jolene: there is a special pain killer for migraines -- sorry I forgot the name, just remember that it was about $50 for 10 pills yikes! does your spouse do it for you? ;-) That's true--I sometimes think that the pain will subside, only to find that I'm in a giant flare. peppermint is good for stomach problems too it's also good for slingshot ammo jolene.... do you have arthritis? jody, what kind of stomach problems? cramping..... mostly jody, I have Fibromyalgia. brb my mom will be glad to hear that don't threaten us but if you make a chamomile/peppermint tea it is good for cramping and diahrea *** Amazin1 has joined #disabled Denise!! Hiya!!! hi Amazin1! hi jolene whoa I'm lagged * Mooooooo hugs the stuffing outta Denise my husb has a food pharmacy book and is always telling me to eat a raw onion daily i wish i could talk my mom into coming online w/ us - shes the herbal guru :o) ping me hello Denise :o) :-) I have lots of books on the subject..... 17 secs, mimi I have used the chamomile/peppermint tea a lot and it really works.. 15 mimi thanks guys, I guess I'm ok now ping me not bad, 3 secs 1 sec brad i'll be back in a few, gonna get my hair cut... i now take the grape seed stuff, the pine tree stuff and a few more i won't log off, though hehe, how bout thirst, any1 got a solution 4 that? H2O? drinking works for me 32 Mimi lol thanx guys :o) Water with a twist of lemon or lime is great for thirst. moooo, send me this log when you're done... *** kb9kyy has left irc (Read error to kb9kyy indy2.indy.net]: Connection reset by peer) personally I rely heavily on Tylenol Moo -- you mean if it doesn't help the pain at least you have a good time? :-) Does anyone have any pain that they haven't found a solution for? carly i got an iced tea machine and lots of great teas I take so much medicine I try not to add any more Tylenol does nothing for me I'm serious about the massage therapy though.... heh, Han carly asked for a solution to thirst yeah, my back, Carly I've thought about massage therapy, jody go.... I have to use Tylenol 3 w/Codeine before the severe pain subsides to the point I can sleep at night if I get those migraine type headaches. yes, the opposite sex what has it done for you? it really works heh, would be nice I take 2000mg aspirin + 30 mg valium and I'm in business. Luckily the valium doesn't put me to sleep ugh... the neighbors in back are playing country music really loud a licensed massage therapist is like a physical therapist... not that i dont like the music, but it is kinda loud my therapist has been working on my hands which are really bad because of the RA... I can't afford massage therapy--my insurance won't pay for it. jody when you have a diablity you do what does work and what might work it helps... I didn't realize that it would, not that much some physically therapy centers have massage therapists/physical therapists... I wonder if I can go even if I can't lie on my stomach then insurance does pay for it... that's how I do it Have you tried manipulative therapy? they have chairs specially designed Mimi never heard of it Jolene jolene i have grown to hate insurance oh, that's cool :o) especially workers comp insurance.... massage works well for headaches too It's osteopathic generated theraphy that stretches the muscles to make them relax--much like massage therapy. yes jody :o) i always have chris massage my temples when i have a headache my PT does that to me a little bit... it helps haa, I detest insurance companies telling what can and can't be done. I was very skeptical at first especially when she started massaging my hand joints... but what a difference I MISSED IT! I MISSED THE MEETING! I personally believe that all insurance people shhould be rounded up and shot.... but that is only my opinion something that works for me with heachaches (most of mine are sinus/allergy related) is to plug my nose & blow air thru, like when yer trying 2 pop yer ears mine too My insurance only pays for short-term physical therapy. Do you all have similar type of insurance. If you do, how do you handle chronic, long-term problems? lol Carly.... have you tried Flonase for your allergies/sinus? no jody, what is that? I'm on comp and the judge ordered the company to pay... *** luscious^ has left #Disabled it is a great new medicine that is only topical for the nose... is it rx or otc? jody, is it better than Vancenase? you put 2 squirt per nostril and it alleviates allergies.. *** `Kevin has joined #disabled i am geting on long term disability and have dual coverage for private ins it is rx.... Flonase is the name. there are no generics *** `Kevin has left #disabled i use nasacort & echinacea right now I used echinacea but had too many sinus infections.... so I use this now to prevent them Ok get this. My chair is 31 and a half inches long, and the lift on the bus is 30 inches.... so we had to take it in and get a new axle for it, i'm pissed, i want at least an angle, they said they can get a 4 degree angle at the most and it will make it 29 inches long.... Right now i have a loaner chair... it's weird.... :( *** iwiW has joined #disabled i cant get anything rx right now - my parents ins. stopped covering anything 4 allergies a few months ago, & now i dont even know if theyll cover me since im 18 oh... it isn't very expensive because my brother doesn't have insurance and he can afford to pay for the rx OH! AND! In the lunch line at school i went through and got my meal, then going around the other side of the railing there is part of the wall that sticks out and i can't get through, so i had to go through the kitchen at school. HelloKit, can you have your doctor give you samples of Flonase? *** Mimi has left irc (Leaving) actually i take that back - they wont cover any of our rx's anymore. theyll only cover certain pharmacies & none of them r in our town that's a good idea jolene.... see if you can get a sample * Pei is pissed :( Oh Pei.... cheer up kiddo Pei, is the school doing anything to make the area you use more accessible? my garage is full of broken down junk which seems to go with disab * jody- hugs and kisses Pei hey... iwiW is that you Mims? *** iwiW is now known as Mimi yup :o) cute... ping me having problems seems like it Does anyone have any suggestions for things that others have brought up? it took me 10 min to get on... all lines busy well I missed some of it.... like what they aren't but *** ChanServ has left irc (Killed (LadyBear (auto update - 3 hours))) i think i'm gonna sneak in the school one night and take a hacksaw to one of the railing legs, then i could get through. *** ChanServ has joined #Disabled lol pei :))) * HelloKit slaps ChanServ around a bit with a large trout *** Mimi has left #Disabled (netsplit) be sittin there, security comes 'Son, what are you doing?' LOL I've thought of trying yoga to try to relieve some of my pain. Has anyone used yoga? I have.... thanks, Moooooooo! *** Mimi has joined #Disabled (from netsplit) hey mr. ircop, how come chanserv's playin w/ the topic again? insurance might be a good future topic yes.... how to kill agents i reset it since it has been very stable OH AND! I was at wal-mart today riding in the motor cart and some clerk came up to me and said this exactly 'Excuse me partner, i'm with the store. Is there a reason you are riding in that?' I about killed him. Mooooooo is an IRCop COOL! :) Pei.... sometimes people make mistakess... I could go on for days about insurance. Sure you want a topic like that--everyone on the channel will have horror stories galore! lol unbelievable - the only time they care who's using it, its someone legit * Pei was gonna link his server here.... but they wanrt me *mimick* dedicated! I've been stopped for my handicap parking tag.... HelloKit: yeah :) jody-: ack! one very threatening letter to the town stopped that real quick... jody there must be a way to kick thier butt I really resent people who look down their noses at me because my handicaps are not apparent to the naked eye. jody-: :) :) :) they even threw out a ticket that I DID deserve... :))) *** Mimi has left irc (Leaving) some old lady cussed out my bf 4 using the sticker & getting out of the car, when he was coming around to help me out! jody-: Oh BTW, you PROMISED ME THOSE HEXES! :) same here jolene later Pei.... they can't be used in anger... how are you doing Kiddo? Mimi is really having problems... Texas has decided to take away free parking for the handicapped as of Sept 1. what???!!!! it figures.... * Pei made an enemy at school right away yesterday. And i was leaving today and he made some mean comment and i said 'Get a life looser.' and he got closer and said 'What?' and I was 'I said, Get - a - life - loser.' so he whacked me on the back of the head :( how come? *** Mimi has joined #disabled Pei.... did you report it? jody-: oh you know teachers, i did report it and my friend was a witness, they said 'We need to see it to do anything!' hi Mimi.... hi :o) what about your parents? moo does amc affect yer hands? Bah, i didn't bother with that yep, sure does hey Mimi.... did you read the letter? *** Terry has joined #disabled yeah Jody, great letter :o) good, well not good, but i have a q 4 u so????? what was your impression i pulled my armrest off and said 'you wanna make soemthing of it' i should have hit him right there, but i would have been suspended :( okay :o) not if they didnt see it Pei.... learn to control your temper! Mooooooo: HAHAHA LOL jody-: i try, i really do, but when someone whacks me on the back of the head i have a hard time.... i get these blisters on my hands, i think i told u bout them - like sweat blisters. do u think they could be caused by the fact that my hands r closed up most of the time? i doubt it but Pei.... you made the comment get a peper ggun jody jody-: he made the comment, i told him to get a life bye y'all Jolene: Changes in blood pressure and hormonal changes could be the trigger for migraines. Other triggers could be a shift in the endocrine system associated with menstruation or taking contraceptive pills. There is also a known genetic component, which itself could be the overdevelopment of excitatory faculties of the sensory syetm. Bottom line as far as I know is acceptance of pain without an external cause in the form of tissue damage becau Carly do you soak your hands *** Fenicia has joined #disabled *** jolene has left irc (byebye) Fenicia! be right with you Pei Hi :) i used 2 soak them in salt water - but it was a pain 2 stand over the sink & it didnt really do that much good *** Mooooooo- has joined #Disabled *** Mooooooo has left irc (Local kill by Mooooooo- (ghost be gone)) hey carly how about aa little bubble bath for your hand and then lots of vitamine e cream Carly, what has the doctor said about it? Skin specialist? *** Mooooooo- is now known as Mooooooo *** Mooooooo has joined #Disabled via telnet every dr. weve gone 2 has just laughed us out of the office Even when the blisters are visible? hello moooooooo they dont believe it even happens /:o) they brush it off as a on-time occurence one-time filled blistered or just air blisters? filled, like sweat or water or something ...hhmmmm weird no clue oh well :oP I'd try a skin specialist (again?) I would call Dr. Dean docs are wierd I like my doctor... he's gorgeous too... bye all.... :-) yeah like that dr, that still tells his patients 2 drink a glass of beer at night when theyre nursing bye Denise! lol jody by Amazin1 that's an old wives tale.... they used to think it was good *** Amazin1 has left #disabled tell that 2 this guy i really believe in vitamin rich cream *** LOG CLOSED: Thu Sep 4 02:07:55 1997