*** LOG OPENED: Wed Mar 31 18:59:17 1999
---
Participants:
  disabled
  ChanServ (nanook@eskimo.com)
  Lily
  wacky
  MsAmazin
  Kark
  gismo
  Kim^^
  Lonewolf
  HelloKit
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*** Mooooooo has joined #disabled-rt
<wacky> guess not 
<Kark> Hi Mooooooo 
<Lily> hmmmmmmmmm 
<Lonewolf> I started the log Brian 
<wacky> ok then I guess we start 
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<wacky> hello all due to the fact I type slow..... 
<wacky> i have written this alll out 
<wacky> and will give an over view of SCI or spinal cord 
    injury 
<wacky> then after.. cam and I will take ur Q's 
<wacky> is this format ok? 
<Lonewolf> ! 
<wacky> yes LW 
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<Lonewolf> yes 
<wacky> thanks 
<wacky> if there are no Qs at this time Lets start 
<wacky> The world of disabilities grows every day. Of the 
    roughly 42 million Disabled in the USA, alone the single 
    largest contributor is traumatic Spinal Cord injury (SCI). 
<wacky> The most common causes of SCI are: sports injuries 
    (diving, and football are highest), auto accidents, and with 
    more and more gang activity; guns. 
<wacky> The most common results of a SCI are: Quadriplegia 
    (meaning that all for limbs have been affected) and 
    Paraplegia (meaning two). 
<wacky> any Q at this time? 
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<wacky> The spinal cord is housed in a body of vertebrae 
    most commonly referred to as the backbone. The backbone is 
    in fact hollow, which allows the spinal column to remain 
    protected. 
<wacky> However if the cord is damaged anywhere along the 
    29 vertebrae that actually contain nerve fiber (coccygis not 
    included) Injury can result 
<wacky> The terms paraplegia (para) and quadriplegia (quad) 
    do not tell us how badly a person may be affected. To 
    describe The severity of impairment terms such as transected 
    (a complete break), or transversal (an incomplete break) are 
    used. 
<wacky> any Q at this time? 
<Lily> ? 
<wacky> yes lily 
<Lily> but ppl say both, the nos and incomplete, etc.? 
<wacky> ok I am getting to that 
<Kark> ? 
<wacky> one at a time kark as soon as I ans lily 
<wacky> ok lets use a comparitive 
<wacky> I am an icomplete break 
<wacky> which means I have some voluntary func blow my 
    injury 
<wacky> camille is complte 
<Lily> i see 
<wacky> she has no voluntary funct blow injury function 
<wacky> is that simply put? 
<Lily> yes, thx:) 
<wacky> ok kark 
<camille3> yes 
<wacky> ur q? 
<Kark> do you mean a complete break/severed or the cord 
    damaged? and whats is concidered a blow 
<wacky> a complete break ( like cam ) the cord is 
    completely cut 
<wacky> I am inc. 
<Lonewolf> ? 
<Kark> gotcha 
<wacky> the is a large part of my cord still in tact 
<wacky> hold on LW 
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<wacky> a blow or swelling can cause damage and bleeding 
    in the cord as well but these ppl usually will regain 
    funct IF the blood supply to the cord are not cut off 
<wacky> ok LW ur Q 
<Lonewolf> cam do you have phantom pain? 
<camille3> no in complete you have no pain or spasms 
<Lonewolf> I mean like when someone loses a limb 
<camille3> no 
<Lonewolf> and they feel pain in the missing limb 
<Lonewolf> k 
<wacky> no I on the other hand experience both spasms and 
    nerve pain 
<Jo-> I get phantom pain in left side! And nerves are 
    totally severed? 
<wacky> no the pain felt by an SCI is different 
<Lonewolf> ! 
<wacky> Ie. I can feel the soles of my feet 
<wacky> but only when its pain 
<wacky> yes LW? 
<wacky> thats strange JO 
<Lonewolf> Jo I think he is referring to the spinal chord 
    not the nerves leading off of it 
<camille3> yes 
<Jo-> never did do things like other people. 
<wacky> but then no 2 SCIs are ever the same 
<wacky> :) 
<wacky> thanks MOMS 
<Lonewolf> np 
<Jo-> Nerves in my spinal cord are severed. 
<camille3> ! 
<Jo-> I still feel pain in left side and down leg. 
<wacky> yes cam 
<wacky> Then not all nerves are severed Jo 
<camille3> i have been this way for so long i think i 
    shut my mind off to it 
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<wacky> u still have some funct or u wldnt feel the pain 
<camille3> ? 
<wacky> yes CAM? 
<Jo-> ? 
<camille3> did they tell u the cord was severed the doc 
    severed 
<camille3> miine 
<camille3> jo 
<wacky> jo thats for u 
<Jo-> mine was severed in accident then they went in and 
    did a rhysotomy too. 
<Lonewolf> ! 
<wacky> ok then ur not complete jo if thet did the rhyst 
<wacky> yes LW 
<Lonewolf> nevermind you said it 
<wacky> ok 
<Jo-> Pain nerves were still partially intact. They severed 
    them and took out sections but I still feel phantom pain. 
<wacky> any other q's 
<wacky> then they goofed jo 
<Kim^^> ? 
<Jo-> ? 
<camille3> ! 
<wacky> yes kimmy? 
<Kim^^> do scilike a lot of strokes regain movement? 
<gismo> ! 
<Jo-> nerves can grow back together. 
<Lonewolf> ! 
<Kim^^> ? 
<wacky> some do Kimmy I regained a lot but it depends on 
    the treatment and how severe the injury wads 
<Kim^^> k 
<wacky> No jo spinal nerves cannot 
<wacky> Jo ur Q 
<Jo-> read up on latest wacky 
<wacky> i did 
<Jo-> my neurologist says you are wrong. 
<wacky> they are trying to regrow but the elect stimuli 
    cant get past scar tissue 
<Kark> ? 
<wacky> well he can live my life 
<wacky> yes LW 
<Lonewolf> Jo I think you are confusing chord with spinal 
    nerves 
<camille3> yes jo 
<wacky> the main nerves in the cord once damage cannot as 
    of yet totally grow back 
<wacky> kark u had a q? 
<Kark> I am a little confused, when some of you say that 
    you can feel pain is the old injury giving you pain or 
    do you mean that when some thing new happens you feel it? 
<wacky> well its hard to explain 
<Jo-> Sorry I just got told I am not allowed to speak so 
    I am leaving. bye' 
<Lonewolf> ! 
<wacky> but I'll try 
<wacky> ok kark u know how a light works? 
<Lonewolf> Excuse me 
<Lonewolf> Jo you were just asked to follow the rules 
<Lonewolf> You do not have to leave 
<Lonewolf> sorry Bri go on 
<Kark> you mean on and off? 
<wacky> no u do not have to leave 
<Kark> its ok w/me LW 
<wacky> yes kark.... now imagine that light bulb is loose 
<camille3> bri let me try to explain 
<wacky> now if u flip the switch u may get a response on 
    occasion 
<wacky> ok cam u do it 
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<wacky> CAMMI? 
<Kark> So the current of pain is stronger then the current 
    of feeling causing the feeling pain? 
<Kark> soory? 
<camille3> kark when part of the cord is intact it will 
    still send singels that it hurts as a complete it caan't 
    send . 
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<gismo> ! 
<Kark> I meant signals not currents 
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<Kark> thanks Cam and wacky 
<Kark> I got it I think 
<wacky> no its just what might be left kark 
<wacky> sure 
<wacky> any more Q's 
<gismo> the sesation is different than normal tho 
<camille3> it is hard to explain 
<wacky> yes it is giz 
<wacky> I wld like to make a comment if I may 
<wacky> ?? 
<gismo> ! 
<gismo> yes 
<wacky> I feel compassion for those of us that believe the 
    media hype about treatments and cures 
<wacky> they arent always completely acurate 
<wacky> and placing too much hope in what may become just 
    takes away from what a person is still able to do 
<camille3> ! 
<wacky> I am as I am and while I wld love to have my 
    body back I have what I have and its up to me with how 
    i deal with it 
<wacky> yes gis then cami 
<gismo> ok u said it 
<wacky> ok cam? 
<camille3> i being in chair so long treatment would not 
    help anyway 
<wacky> I know same here 
<camille3> ! 
<wacky> I wouldnt know what to do first 
<wacky> Fall on my face or my a** 
<wacky> yes cam 
<Lily> :) 
<camille3> afriend asked me once if they had acure if I'd 
    do it 'I said if they guarentee no pain 
<wacky> thats how i feel 
<camille3> can u imagine how it would hut for the feeling 
    to come back 
<wacky> it be terrible 
<HelloKit> ! 
<wacky> come on folks i have a rule: THERE IS NO DUMB Q 
<wacky> yes kit 
<HelloKit> Sort of like Nicholas Cage feeling pain and 
    hunger for the first time in City of Angels... :o) 
<Lily> :) 
<wacky> yup thats how i imagine it 
<camille3> yes 
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<camille3> well our bones wouldn't hold our weight 
<wacky> but SCI was the best thing for me because I had 
    to take control of my life 
<wacky> no theyd snsp like twigs 
<gismo> ? 
<wacky> yes Giz 
<gismo> has anyone else had para shoulder 
<wacky> well I donno I am a quad 
<wacky> lol 
<gismo> lol 
<wacky> but yea 
<Lily> ? 
<wacky> it is from the repetitive motion 
<wacky> yes lily 
<gismo> what do u do about it 
<lisalego> ? 
<Lily> k, it been answered 
<wacky> well in short .... u reduce the stress 
<wacky> ur upper body not as dense as lower so it cant 
    take the stress 
<wacky> yes lisa 
<camille3> ! 
<lisalego> do we wait to talk until talked to 
<Kim^^> para shoulder=rsd? 
<wacky> no lisa u type ? or ! and I call 
<wacky> es cam 
<wacky> yes cam 
<wacky> rsd kimmy? 
<camille3> they have a good arcile in PN magazine for 
    march 
<Woz> mad cow 
<wacky> i dont get that any more 
<Kim^^> repititive stresss disorder casrpal tunnel 
<camille3> on useing arm for legs 
<wacky> is simial kim 
<wacky> is simular kim 
<wacky> I have heard it called tennis shoulder 
<camille3> yes same wacky 
<Lily> ? 
<wacky> I call it Pushers curse 
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<wacky> yes lily 
<Lily> wacky, why you not get it anymore?? 
<camille3> 1 
<lisalego> ? 
<Kim^^> ! 
<wacky> I do get it but not as much cuz my primary chair 
    is power now 
<wacky> yes cam 
<Lily> k 
<wacky> then lisa 
<camille3> they say you should be lined up with the wheels 
    of chair to stop that problem 
<lisalego> can I ask a question about something different? 
<wacky> I am mom but it dont help if damage already done 
<camille3> :) 
<wacky> no only to topic 
<wacky> it is restricted to the topic of SCI 
<wacky> for tonight 
<lisalego> this is about sci 
<wacky> ok then ask lisa 
<lisalego> I have a question about catheters 
<wacky> ok 
<wacky> cam may be yur best bet 
<camille3> go ahead 
<lisalego> Do you all do intermittent self cathing? And if 
    yes how do you clean your catheters? 
<wacky> ok I do use it Lisa I discard my caths usually 
<camille3> with atti. soap 
<wacky> but if I have to reuse 
<wacky> place cath in tupperware cover with water 
<camille3> antibac.soap lisa will do 
<Lonewolf> ! 
<wacky> and nuke for 2 min 
<wacky> it will act like auto clave 
<wacky> yes LW 
<lisalego> what is atti soap? Do you let them soak for a 
    few days? Then let them dry in a towel? 
<Lonewolf> we have a urologist in town that says to spit 
    on them and reuse 
<wacky> oh god no LW 
<Lonewolf> says your body is used to your own bacteris 
<gismo> eewww 
<wacky> u can cuase infect that way 
<Kim^^> ? 
<lisalego> what is auto clave? 
<wacky> a sterilizer lisa 
<lisalego> I wash mine in soap/water then rinse in 
    vinegar/water and dry in towel for a few days 
<wacky> SCI immune systems are a bit ummmmm WONKY 
<Lily> :) 
<camille3> antibacterial soap lisa and store in covered 
    container 
<wacky> I nuke is quicker 
<wacky> yes kimmy 
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<Kim^^> do all paras/quads have to cathetar? 
<gismo> i dont 
<camille3> ! 
<wacky> its better if we do 
<wacky> yes cam 
<lisalego> if I store in covered container won't bacteria 
    grow since they are still moist inside 
<camille3> I get less infections with the indwell cat 
<wacky> not if cleaned properly lisa 
<lisalego> what is an indwell cat 
<camille3> then store where it will drain 
<wacky> I get more but agian each is diff 
<wacky> any final Q's 
<camille3> you leave it in and change it once a week 
<lisalego> I can't not get a UTI, do any of you take 
    antibiotics daily 
<camille3> 1 
<wacky> I used to do macrodantin daily 
<wacky> is good for prevention 
<wacky> yes cam 
<lisalego> when will the next meeting be 
<camille3> i take noroxen daily 
<wacky> same time next week lisa 
<lisalego> thank you all 
<gismo> ! 
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<wacky> well if there are no more Q's Thank you all for 
    coming 
<wacky> oh yes Giz 
<Lily> ! 
<gismo> good job wacky apreciate it 
<wacky> and Lily 
<Kark> thanks wacky 
<wacky> thanks 
<Lonewolf> good meting bri 
<Kark> yes 
<Lily> thx wacky and cam , was great meeting 
<wacky> and BTW I DID READ UP on all the new stuff 
<Kark> thanks Cami too 
<Kim^^> yep 
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<Lily> lol, we kno 
<Lonewolf> maybe we could have another on pressure sores 
    and adaptive devices etc? 
<camille3> was good brian 
<wacky> thank you all for ur patience 
<Lily> you did great 
<Lily> both of you 
<Kark> yes you did 
<wacky> sure cam can I rope u into that one? 
<camille3> u might 
<Lily> :) 
*** LOG CLOSED: Wed Mar 31 20:03:40 1999