Session Open: Wed Jan 06 19:00:00 1999 hi judi hello sorry I'm late hi judi i'll start it and edit later Hi Judi the logging? yeah k Welcome everyone to tonight's meeting. hi It help us to organize ourselves if we set goals. Goals give us a purpose, something to strive for. Without them we no direction. Goals can be short term or long term. If the goals we set are unreasonable, feelings of frustration and depression can result. Goals need to have a plan of action and a time frame. Without goals, people (especially disabled people tend to remain stagnant and feel worthless. A feeling of achievement is healthy for anyone. *** LittleMan has joined #disabled-rt everyone caught up? yes rofl and Lily An example of short term goals would be my daily goals for today, which were: to complete some eb work for my autoimmune group to get dressed before 10 am to finish going through my '98 files to prepare for this meeting An example of log term goals would be my goals for the year, which are: to eat a healthier diet to do my exercises daily, esp range of motion to lose weight to spend more time in daily prayer lot like mine judi 1. Do any of you have goals? yes what are they LM? yes yes LM first Long time goal is to get back in hockey like i used to before the insitent hat incident LM? how i got my disabled oh ok w do you have a plan of action? i still play hockey but it is harder to play but how do you intend to reach your goal? i work out once a week specalizing in back exercises *** WonderW has left #Disabled-RT ok short term? been thinking of losing a little weight too general ever since it happened i have trouble exercising make specific limits parden? ex: lose 5 pounds by Jan31 10 by Feb5 exercise hard when back hurts, but losung weight helps without being specific goals lose their meaning ok lily true yes thats why i want to lose weight makes it lighter to walk yes yup, that wud help. lm go on ith yours alison :) ny turn?? yes well, long term....... is to move to states, live/marry wacky ok i wish he was here *** anny1 has joined #disabled-rt i'm sure you'll fullfill that Alison shortterm? well, LM, has become quite complicated *** karen-w has joined #disabled-rt how so? short term? shrt-term is 1. call us consul 2. see lawyer but I see no limits there hen? limits?? o, when I think we are confusing sgort term gols with a plan of action well, this week for consulate you are stating a plan to achieve your long term goal explain?? what is your immediate goal for 1 day example: call laywer tomorrow tomorrow, i want to smile comments? tomorrow, book hotel I still don't think you are grasping the short term aspect right daniel can someone advise me??? lol, mooooooooo how to smile? don't get the short term difference and the plan of action...confusing??? esp because we are disabled we need short attainable goals ok her long term goal is to immigrate to us well, theres so many factors in this case her plan is to cll lawyer, immigration etc I'm using one step as an example short term would be Thurs: call lawyer Fri call immigration etc o, ok to many channels right pardon? *** wacky has joined #Disabled-RT hi bri sorry sorry i know not all goals have to be related as far as long and short term ok i am here Lily stated her long term goal good, lw setting our goals maybe her short time goal for tomorrow might be to clean out a closet *** In has joined #Disabled-RT hi In sorry sorry i know the idea is to have a plan and organize your life no, im too focussed 1 more time LM *** In has left #Disabled-RT A goal can be: I will walk 10 steps today * LittleMan is sorry but his mom taught him to be polite LM k i met a goal today i met an internet friend via phone for 1st time today :) sorry sorry anyone else have a goal in mind? we getting off topic wtg brian yes bri so the goal was accomplished anny? yes and i feel bttr too :) a sense of achievement bri, long term goal?? *** Amadeo has joined #disabled-rt I have a goal to be able to type in chats faster ok haa what are you doing? how about if you don't know if what you want is good for you? example? longterm goal same as urs lily I am working on using an onsreen keyboard with selectable words *** In has joined #Disabled-RT good idea haa do you have shorter daily goals yes, wacky, is same brb LILY *** In has quit IRC yes?? like working on it for so long a day etc? * LittleMan is getting a headache to many channels bye LM no i'm gonna stay leaving other ones *** In has joined #Disabled-RT haa? HELEN! i'm here short term? charlie? quiet meeting yes goals? I ahve a giant to do list, my day begins with answering all email wonderful haa i know what you mean helen that was what I was fishing for and responding to emails, doing research for friends and family watch out for doctor appts a to do list exactly i'm just trying to get a list going research new developments in my areas in my disability when you have a to do list you have a reason to make each day count this is actually considered a type of therapy and tomorrow i gotta get MM to bury my 18 years old that died today sorry cat :) we have discussed depression many times *** In has quit IRC goals combat depression sorry helen anyone else? Daniel? just listening now we all aim for something....... helen ur fur ball died? i am sorry th toilet on bad days....jk karen? *** Driveshaf has joined #disabled-RT deadh? *** LittleMan has left #disabled-rt yes, bri he did....best family pet we ever had.. he was 18 human years old Dony e are discussing long and short term goals LW what if your not sure what the goal is?? ok try it out on us maybe we can help u define it go for it deadheadfan well I have problem with job....don't know if I should change job or work at the one I have *** atrpilot has quit IRC ok suggestions? I just stuck never stuck I would say your goal is to make a decesion not enough money...love the job though.... killing myself to make ends meet plan could be to list benefits of each option then make an informed decesion *** Kark has joined #disabled-rt CedarIce hat about you yeh..thats good...but how much time should I give it .... been thinking about this for a while I have a couple long term goals.... just a sec cedar let deadhead finish first...:) thx dead hat is a reasonable time? income and healthwise? i just completed another goal i finishe framing all the pics and certificates i am gonna hang in bedroom after i get bedroom set later this month What is dead hat? what?? ? lol hat not hat what 6 mo? a year? I'm broke and alway exahausted 1 month then hat=what, keyboard misses on W"s no longer okey......1 month now-plan what do you need to do? list.....stuff everyday?? *** zelda has joined #Disabled-RT what stuff? I got it ok Karen i wanna meet judi by years end ok Karen do you have plan for deadh? good goal, wacky what stuff????...beside being broke I don't know My goals are to exercise every day and eat healthy ok even if exercising means making it around the block lets see if we can get a plan for deadh 1. make a list of finances do I make a list of everything I hate step 1 buy organizer that fits on fridge step two use it well you could list pro's and con's 2. figure out if you can survive without job What is DH planing? 2. send them to: judy, pobox 1176............ loves job-not enough money-lots of pain orry back let's think on it and get back cedar go ahead Ok..:) okey will do that.....thx....will give you update two of my long term goals are 1. to make my home more accessible to me, as my MS progresses I am finding I need to change things in the house DH has back pain, loves job, but wants to change job for better money, is that right? yes 2. to save enough money to be with my daughter when she has her baby excellent goal cedar I assume u have plan? for #2 I plan on mine: to be rich...I'm pretty much as goo as I'll get Cedar save a little each week cut out eating out if you do or renting movies Joe! saving a specific amount of money each week and put it away for ticket and expenses good ide a for goouse make a list of everything you want to change House I mean then start on each one I am currently doing this wiht my house good plan for #1, I am working , and this just started this week , with my OT and have them come over to my house and take me through it and give ideas also can list most needed changes first starting with most important Yes Yes, good idea It seems overwhelming...but to list them and take them in order of importance is good idea ok cedar and zelda have just illustrated everyhting very well karen? yes either karen? Each year I plan to get organized, I always had the phylosiphy that I knew where everything is but it is to much work to be as messy as I have been getting need to narrow that don When I tell you how easy it sounds it not that easy go on I get overwhelmed and I quit you need a plan and short attainable goals what do you want to organize Kark??? bills? house? Since I live with others I keep everthing I own basicly in my room IC I keep everything both LW environment ok I miss payments too clean out 1 drawer a day Kark is your room the way you want???? I BBL decide what you need to keep and what u don't I mean the overall sey up NO room is a disaster Get it setup the way you want 1 step at a time then organize yes *** wacky has quit IRC but don't try to do it all at once remember short term No if room is disaster.....first picture how you want it..... good point I sometimes live in a disaster who controls your living environment? I sometimes am a disaister HAHAHAHA brb you do so it can be changed I know I would like to have some before my New Year resolution day I start Superbowl Sunday, its my new years my suggestion is eliminate the unnecessary, have a throw away party with yourself good idea too when is superbowl...lol] ok Raven what are your goals Last Sunday in Jan ja31 good idea Anny *** karen-w has left #disabled-rt jan 31 Raven? Dony? yes goals? i told you, I'm never going to get better, so I just want to be rich so i can afford to b comfy] football ok, i got goal that's too general Raven for feb. ok Lily the goal is to win the games at this time none feb. 1st i buy plane ticket you need some Dony how so Judy, it's cyt & dry cut good lily yup time limits where you go Lily plan etc for 2 wk trip but i don't Dony, I'm probably the only one here that knows you ca, zelda ya thats great Lily and if you had goals youwould not feel as down at times easy goals anny? who is donny?? i feel stuck any accomplishemnt makes us feel better about ourselves so you need a plan This is Helen and I think I know Dony Dony=Driveshaft oh yes you do O ya thx zelda exactly right anyone else? How do you feel if you fail to reach your goals? yes yes? I was asking you if you had goals i have observation ok if u don't have any u don't fail what if your long term and shrt term gosls get reversed? ?? but Dony-where are you going? If you fail to reach your goals....pick yourself up and dust off and go at it again :) if you never accomplish anything then you feel you are not moving forward or acheving anything yes to both of you one of my goals is to have my house in shape and invite the whole family for christmas next year, short term is to get one of the room painted i don't know great anny without goals you have nothing to strive for...you become stagnate...life becomes boring and dull well, some goals that you thot were shrt term, take loger??? that that's true Lily yes Lily that happens break it done into smaller parts e have to adapt but they still reachable yes my problem is getting discourgaed and getting sidetracled yes but if we fail to achieve a goal like haa said dust self off try again yup great anny trying to stay focused Anny I need to think like you zelda I think that happens to all of us One step at a time good advice, haa, im dusting now:) when we look at huge goal its scary yes agree LW smallparts are easier :) lily true, lw Dony we have to get u some goals I started this year trying to make my goal each day it is possible to enjoy life without being totally goal directed but, they come in handy a lot of the time you are becoming stagnant me too zelda maybe for some anny not many though agree anny however its better to knwo what you are striving for 4. Are your goals realistic? Dony have you read any Steven Covey nope question 4 is just for each of you to think about Look at Seven steps of highly effective people 5. What goals should we set for our disabled meetings? k, i think in bed, night all:)) Trick question need input *** Lily has quit IRC informative and fun how we can help each other achieve goals what do you all want to see these meetings accomplish? ok well deadh zelda and anny and haa have all had good ideas Judi, you are doing very good at facilitating these Wed meetings so check that goal as complete thanks haa how many fill out a daily to do list i wonder? a short weekly check in as part to see where we are on our goals and get encouragment and ideas I really want to know if any of you want to dip into politics again oh zelda what a good idea I have a Franklin Covey Planner I understand what youu said now deadh I do anny *** Driveshaf has left #disabled-RT yes they are great KArk just wondered we need to help deadh with a plan I have several Covey tapes and have been through some of Covey training really gets you focused daily to do lists? how many? gotta go bye all *** haa has left #disabled-RT ok next topic Winter Safety yes lists sory got bumped out ok Since much of North America seems to be plagued with snow aand icy weather, I thought we might review a few safety tips in the form of "what if" questions. Those of you that are enjoying warm weather right now might have a few suggestions also. 1. You are in a wheelchair and you want to go somewhere. Your ramp leading outside is snow and ice covered. What do you do? bb *** Amadeo has quit IRC anyone here use wheelchair yes what do you do? can a wheelchair roll in snow??? I have never tried I live in S. Calif well I tried it recently and guess hat? slip sliding oh Daniel? perhaps you have some ideas can you get snow chains for wheelchairs?? I have learned wooden ramps are hazardous I have no idea deadh its a big problem I would think metal ramps would be bad too yes im back well I seem to be the only one with that problem so I am very curious to know. what do people do??? zelda do you use a wheelchair? have a wood ramp but we dont have snow here and yes I do oh can walk some wiht a cane I don't kno what to do deadh was very cold here today so use chair its a major problem for me right no w I bet LW we have had a lot of ice and you can't scrape wood rain here but have not had problem wiht that how about salt I do remember Daniel mentioning a gortex rain cover once or sand sand might help salt is bad for the ood w thanks zelda oh ok Judi I'll try sand I use crutches and its very scarey and all my muscles tighten up trying to stop myself from slipping I ahve the biggest fear of falling I know about the tense miscles Me to Z 3. You use a cane and their is ice on the walk. What should you do? scream lol Snow is actually easier I think than Ice *** deadhead1 has joined #disabled-rt sorry keep getting kicked out get someone to support you yes ice very scarey on crutches, have learned what to attempt and not attempt by years of trial and error I walk in the snow if the sidewalk or driveway is Icy when its icey here I dont go out *** deadheadf has quit IRC but can get away with that since only happens every few years 4. You live in a rural area and a storm is coming. What precautions? 5. You have a heart or lung condition and that driveway needs shoveling. How should you proceed? sorry hit 2 at once When it snows going out frequently to sweep the sidewalk makes it easier in the long run have candles, medicines, flashlights cover your wheelchair batteries with plastic to protect from water stay away from windows good idea DH *** CedarIce has left #disabled-rt yes I had never thought of that stock up on meds back up heat source I sweep the steeps every hr when it starts good idea if you can I know every hurricane season I plan ahead but tonight it is suppose to snow here during the night anyone with heart or lung problems needs to enlist help so would do same thing if in storm area I live in the country thats very serious LW or rural area power outages are frightening yes this is time to call those people sthat say "if you ever need antthing honey" agree anny problem is no one can get here boondocks bad roads get cellur phone for emergency yes we have one but think we are going to get a generator make sure someone checks up on you I think anyone with a disability should have a cell phone have items that will make it easier to get through outage they can be expensive though (phone) yes Z You have no feeling in the lower half of your body and the winchill is way below 0. You are going out. What precautions should you take? bundle up well dress in layers and make sure you keep dry good *** anny1 has left #disabled-rt check extremities for signs of frosbite good idea LW very dangerous yes glad I dont live up North This is ne area for me I never thought about all of this listen to what people are saying about the weather around you....I'm always cold...I cannot trust my own body I have less feeling in legs now true deadh I like it here but the winters can be bad I have found injuries on feet and have no idea hen I got them me too we should never go barefooted I have that problem with legs will have bumpes into something and be badly brusied yes and not know how bad it hurt frostbite is easy when you can't feel I bet LW ell that's about it I can imagine never open doors by running wheelchair into them.... I keep braking bones in my feet really? yes gosh I do that a lot thanks for the tip careful yes cedar asked me to tell all goodbye and that she had a lot to think about now my biggest problem is having energy to exercise deadh I feel like we didn't help you how do yall deal wiht this my disease zaps energy have problem with that I am soooo tired after work every day But you still are inspiration LW my disablity keeps changing....I hang in there thanks karen and travel a lot driving takes a lot out of me how so deadh? Judi I ahve enjoyed the site and emails and chats immensly wonderful zelda we are trying hard to make the whole thing useful Dead whats one thing you like to accomplish by the end of feb think small I just know that each day is different...somedays are going to be hard.....others fun and easy....I just live for the good days hat's your dis? who me or dead???? or Kark both all three I have cerberal palsey sorry short term memory loss dead? It's like SMA but I'm having all kinds of circulation problems....and pain in my legs....lots of weird stuff SMA?????? what's sma? spinal muscular atrohpy ok leg problems make sense then MD IC Karen? massive nerve damage present at birth so sorry birth defect here too It's okey.....33yrs to deal with it I have multiple autoimmune illness and degenerative disk disease and a few other things they told my father I was MR and would never talk, walk or function rheumatoid arthritis, sjogren's etc terrible zelda Not bad got my Masters and work for state govt as an adminstrator It seems like if you have one disablity you end up having more than one problem Karen? Arthrogryposis Multiplex congenita oh yes AMC agree Dead leads into one thing to next zelda you ought to go back to doc and say hi Sorry,I walked away a sec its ok whats that Kark in laymans terms ell that's it for tonight oh ok send the doc a copy of your degree go ahead karen LW do you have problems with cathing everything Its hard to get people to understand mine, its not comon yes oh sorry did not relaize it was time to go np e can go on The joints are stiff and have limited mucle use karen aren't you born with deformities Yes born with it can u use hands? bet its painful kark have deformities with it same as Moooooo thescoliosis is causing pain ouch Yes like Mooooooooo I am having increasing mental impairments I am having dificulties walking distances I simply can't walk distances thats me Kark getting worse as I get older sorry I keep getting kicked out its ok also cant write at all anymore thank goodness for computers I can but no one can read it Lw were you born disabled no run out of breath, spine putting pressure on lungs and less use of right leg....both hips are dislocatted I developed the degenerative disk at age 28 LW is it medicine thats causing mental probs no doctor says it is result of autoimmune process was looking for something simple to help Whats that LW hmmmmm that makes sense LW rheumatoid and everything else I got in my 30's been extreme the last 2-3 years how about oxygen Kark any help??? *** zelda has quit IRC LW you do an excellent job.....I have a hard time writeing with my spelling problems well let's call it a night I have typing probs *** zelda has joined #Disabled-RT this was a good meeting thanks for all the participation I enjoyed it thanks again ur welcome thanks bye all Yes good one bye goodnight dear friends good night Thanks all, I wish I got here earlier -> *disabled* STOPLOG -disabled- LOG ERROR: There was no log open. *** deadhead2 has quit IRC night all *** Kark has left #disabled-rt *** zelda has quit IRC Session Close: Wed Jan 06 20:45:36 1999